That's it! All done, our trip to the Big Smoke that is! What a great few days it has been and, I can't deny having a reason to stay an extra few days was lovely. It was practical too though as it only worked out a total of £10 more to travel home today (Saturday), including additional hotel costs than it would have cost to come home the same day as the trip to the palace!
When we arrived on Wednesday we checked in to a very swanky hotel, Jonathan tried out the posh bath whilst I raided the mini bar and complimentary snacks!
We headed out on Wednesday night to meet a friend of Jonathan's and had a lovely night, dinner, drinks and then drinks and dancing, (all be it briefly) were in order! We finally got back to our hotel room very late and turned off the light as the clock changed to 3.26am! I was awake around 4 hours later to prepare for our visit to Buckingham Palace!
The visit was lovely, it was to accompany a friend as she collected her OBE. The Queen didn't do the ceremony though, this time it was HRH Princess Anne. The whole thing was very well planned and choreographed as you'd expect, they do 27 of these investitures every year with HM Queen, HRH Prince Charles and HRH Princess Anne each doing around a third each. After the ceremony we met with some more people and went for lunch.
After a late lunch we hot footed it back to our posh hotel to collect our cases and dash across London to a not quite so posh hotel. We dumped our cases, changed quickly, (within literally 5 minutes), and then dashed off to meet another friend.
We had a lovely evening, it was nice to chat and to hear some old tales etc. we ate, we drank and then we moved on to another bar and then over to Soho for a few more drinks. It was lovely to have a night out together.
On Friday we didn't have an agenda other than having a nice time and taking in a show last night. We got up at a reasonable time and after a decent breakfast we headed out. We browsed a few shops as we made our way to Leicester Square and bought tickets for "We Will Rock You". We went for lunch nearby at Wong Kei's (Wonkys) which was really good.
From there we wandered through to Trafalgar Square then back to our hotel to change for our night out. The show was brilliant, the story was OK but overall the experience was great. If you don't know already, the musical was written by Ben Elton and features songs by Queen. At one point the song, "Only the good die young" was sung. This was never a significant song for Steve or I at all but the lyrics resonated with me:-
Only the Good die young
They're only flying too close to the sun
And life goes on - Without you...
(see the full lyrics here)
I shed a tear but then reminded myself, life does go on and I'm fortunate to have someone at my side who is here to share that life as it goes on. He makes me very happy and I'm assured I have the same affect on him. We chatted about it and Jonathan understands and accepts that sometimes there will be little things like that to remind me of Steve. He will never be forgotten and it is nice to know that Jonathan understands.
After the show, you guessed it, we headed off to the pub. After a few drinks we headed back to the hotel and had a few glasses of wine before turning in for the night. Saturday morning we had a lie in before heading off for breakfast. We had a lazy day, wandering about, stopping for a coffee and a chat and generally just enjoying being in each others company. It's no more complicated than that. Jonathan is easy to spend time with. I enjoy his quirky ways and keep noticing endearing characteristics, all of which make me smile and make me very happy.
When we got home last night it was lovely to just relax, after a bite to eat we curled up together on the sofa together, slouching in our dressing gowns.
We've had another lie in today and it's past midday and Jonathan has only just got dressed, he's beat me to it though as I've not had a shower yet, I've spent time here sat here posting this blog, that's my excuse anyway. I've no idea whats on the agenda for today, if I am honest I don't really care, I am just going to enjoy another day with someone special before I go back to work tomorrow.
I hope you are having or have had a lovely weekend and I'll write soon.
xxx M xxx
Life has been varied and I’ve experienced good times and bad as I'm sure we all have. In no particular order I'm a Partner, Friend, Brother, Son and Widower trying to make a difference. That's not an exhaustive list but its a good start.
Showing posts with label Brain Tumour. Show all posts
Showing posts with label Brain Tumour. Show all posts
Sunday, 13 May 2012
Tuesday, 8 May 2012
Ramblings of me....
Well it's been over a week and I've not written but I am looking back over the week and can see nothing but smiles really. Right now I am laid in bed next to Jonathan and enjoying a late start. It was a bank holiday yesterday so we have taken the rest of the week off. I was taking a few days off anyway but am pleased Jonathan is too.
Later this week we are off to London. I have a friend who received an OBE in the new years honours list so she's invited me along too to Buckingham Palace to see The Queen awarding her medal. It will be lovely to get to go in to the Palace and see The Queen and of course to see the whole ceremony. I will write more about that later this week.
Back to last week, there isn't a lot to say really, just work is, well, just work and home is good. On Wednesday Jonathan joined us and Steve's Mum for dinner in the evening. It's not really a big deal in the grand scheme of things but I think it is nice that Steve's Mum seems to get on well with Jonathan too.
I may of said it before but whilst I don't seek approval for my decisions from anyone I don't like the idea of my actions causing upset. We both understand how it may be difficult to see me with someone else, especially given the circumstances, and this goes for Jonathan too after such a long time with his ex but we are both mindful of that but, accept life is too short to be unhappy or to live to suit someone else's wishes so that's why we are where we are, just enjoying life and each other.
You'll recall if you read regularly that my last blog mentioned my disappointment with Facebook being unable to list me as a Widower and in a relationship. Well I haven't had a response from Facebook, not that I expected it but, it would have been nice.
Anyway, I changed my relationship status on Saturday to "In a relationship" with Jonathan. It surprised me that he did too as there are other issues for him but I was happy about it. It may not seem a big deal but it is, it's sort of publicly declaring the relationship as more than a passing fad. Now, maybe this is a difference between mature adults and teenagers but, many younger friends may change status after a second date but for me it needed to feel like more than a fling, (not that I am a 'fling' sort of guy anyway).
My change of mindset on this comes as a result of two things really. Firstly I recently posted on another widowed friends Facebook wall that "moving on doesn't mean forgetting it just means accepting", this came about as people had commented how cheery she was following the death of her husband. She has to move on, she has small children who need her love and attention but, like me, she was able to grieve for her lost future with her husband before he died. I can't explain but I hope you understand. Those who have experienced a terminal diagnosis will understand.
Secondly, I am very proud of Jonathan, he is a lovely guy and far from trying to eradicate Steve he is accepting of my situation, he never complains about anyone mentioning this guy who must seem like a hero from all the nice things people say about him. Whilst I can't deny Steve's existence and the influence he had on me I can not deny Jonathan's existence and how happy he has made me.
My relationship with Jonathan is equally as important as that with Steve but Jonathan is the present and Stephen and I can no longer be together physically so it is only right I do as I keep promising myself I will do and live for today, and, for those around me today. One of my "inspirational quotes" I have on my iPad reminds me of this and goes along the lines of, "the past is a nice place to look at but not to live in" by this I take it to mean accept and appreciate the journey you have been on. Allow it to shape your future but don't let it rule your present.
That's it I guess, that's where my blog has taken me today. I never know really when I set out where my blog will go. I just write and think with not too much thought of whether it makes sense, it's just the ramblings of me and these are just snippets of conversations I have with myself in my head.
Just thinking about other things, it's two weeks until my holiday, I still have a lot to sort, including travel insurance so these are all jobs on the mental list I have. I need to wash and pack holiday clothes but, before that I need to sort clothes for London. We are making best use of our train tickets and staying an extra two nights in London.
When I looked at the price of tickets etc the return tickets dropped in price drastically if we returned on Saturday, so much so that we were able to pay for a hotel for an extra night and return travel for just £10 more than the cost of an earlier return. It's not rocket science is it, just £10 more for an extra night away! Jonathan has been stressed and needed a break too so it's all worked out for the best. Hopefully he will return to work next week rejuvenated, inspired and fired up!
Finally, on a more sombre note this week has seen the passing of another BT Buddy, a guy with a brain tumour that Steve and I met at The Palace of Westminster when we went for the Behind The Mask exhibition in March 2011. (click here and scroll past the interviews to see Steve's mask and what he wrote about it) (Read more about his radiotherapy mask and how it was made, click here) He was a lovely lad, early 30's (like Steve) and so much to offer. It's so sad, he has left a young daughter too who will never know her Dad. I am also aware of some more BT Buddies in my wider circle too who have passed this week. It always makes me thoughtful to hear of these lives extinguished. My thoughts have been with the BTB team a lot this week, I want to help more and feel now I am in a good place I can do that more so.
Anyway that's me done, I shall email this off to myself from my iPad to my PC so I can add the pics so when I upload this later don't think I am lazy still being in bed mid afternoon, it's only 9.30am now, it's a day off work but I'm getting up, just as soon as I've had a hug and kiss from the dishy bloke beside me!
Xx M xX
Later this week we are off to London. I have a friend who received an OBE in the new years honours list so she's invited me along too to Buckingham Palace to see The Queen awarding her medal. It will be lovely to get to go in to the Palace and see The Queen and of course to see the whole ceremony. I will write more about that later this week.
Back to last week, there isn't a lot to say really, just work is, well, just work and home is good. On Wednesday Jonathan joined us and Steve's Mum for dinner in the evening. It's not really a big deal in the grand scheme of things but I think it is nice that Steve's Mum seems to get on well with Jonathan too.
I may of said it before but whilst I don't seek approval for my decisions from anyone I don't like the idea of my actions causing upset. We both understand how it may be difficult to see me with someone else, especially given the circumstances, and this goes for Jonathan too after such a long time with his ex but we are both mindful of that but, accept life is too short to be unhappy or to live to suit someone else's wishes so that's why we are where we are, just enjoying life and each other.
You'll recall if you read regularly that my last blog mentioned my disappointment with Facebook being unable to list me as a Widower and in a relationship. Well I haven't had a response from Facebook, not that I expected it but, it would have been nice.
Anyway, I changed my relationship status on Saturday to "In a relationship" with Jonathan. It surprised me that he did too as there are other issues for him but I was happy about it. It may not seem a big deal but it is, it's sort of publicly declaring the relationship as more than a passing fad. Now, maybe this is a difference between mature adults and teenagers but, many younger friends may change status after a second date but for me it needed to feel like more than a fling, (not that I am a 'fling' sort of guy anyway).
My change of mindset on this comes as a result of two things really. Firstly I recently posted on another widowed friends Facebook wall that "moving on doesn't mean forgetting it just means accepting", this came about as people had commented how cheery she was following the death of her husband. She has to move on, she has small children who need her love and attention but, like me, she was able to grieve for her lost future with her husband before he died. I can't explain but I hope you understand. Those who have experienced a terminal diagnosis will understand.
Secondly, I am very proud of Jonathan, he is a lovely guy and far from trying to eradicate Steve he is accepting of my situation, he never complains about anyone mentioning this guy who must seem like a hero from all the nice things people say about him. Whilst I can't deny Steve's existence and the influence he had on me I can not deny Jonathan's existence and how happy he has made me.
My relationship with Jonathan is equally as important as that with Steve but Jonathan is the present and Stephen and I can no longer be together physically so it is only right I do as I keep promising myself I will do and live for today, and, for those around me today. One of my "inspirational quotes" I have on my iPad reminds me of this and goes along the lines of, "the past is a nice place to look at but not to live in" by this I take it to mean accept and appreciate the journey you have been on. Allow it to shape your future but don't let it rule your present.
That's it I guess, that's where my blog has taken me today. I never know really when I set out where my blog will go. I just write and think with not too much thought of whether it makes sense, it's just the ramblings of me and these are just snippets of conversations I have with myself in my head.
Just thinking about other things, it's two weeks until my holiday, I still have a lot to sort, including travel insurance so these are all jobs on the mental list I have. I need to wash and pack holiday clothes but, before that I need to sort clothes for London. We are making best use of our train tickets and staying an extra two nights in London.
When I looked at the price of tickets etc the return tickets dropped in price drastically if we returned on Saturday, so much so that we were able to pay for a hotel for an extra night and return travel for just £10 more than the cost of an earlier return. It's not rocket science is it, just £10 more for an extra night away! Jonathan has been stressed and needed a break too so it's all worked out for the best. Hopefully he will return to work next week rejuvenated, inspired and fired up!
Finally, on a more sombre note this week has seen the passing of another BT Buddy, a guy with a brain tumour that Steve and I met at The Palace of Westminster when we went for the Behind The Mask exhibition in March 2011. (click here and scroll past the interviews to see Steve's mask and what he wrote about it) (Read more about his radiotherapy mask and how it was made, click here) He was a lovely lad, early 30's (like Steve) and so much to offer. It's so sad, he has left a young daughter too who will never know her Dad. I am also aware of some more BT Buddies in my wider circle too who have passed this week. It always makes me thoughtful to hear of these lives extinguished. My thoughts have been with the BTB team a lot this week, I want to help more and feel now I am in a good place I can do that more so.
Anyway that's me done, I shall email this off to myself from my iPad to my PC so I can add the pics so when I upload this later don't think I am lazy still being in bed mid afternoon, it's only 9.30am now, it's a day off work but I'm getting up, just as soon as I've had a hug and kiss from the dishy bloke beside me!
Xx M xX
Monday, 30 April 2012
A New Box! A New Rant!
I am sure many of you will look at that title and wonder... “what the hell?.....” So, here goes. Anyone that knows me now or who has known me over the years knows I have a bit of a thing for boxes. Not the cardboard variety but just nice boxes. I have special boxes for cufflinks, obviously one for jewellery and another for watches. There’s some with photos and some for photos which are in frames, (I tend to move pictures around). There are some full of trinkets and bits and some that I may not have looked in for many months but in addition to those I have memory boxes too. I say boxes as in plural as there are a few. The most recent being obviously one which has a lot of Stuff from Steve’s last 18 months or so in there. In short, I have bought a new box, I will explain.
You may or may not be a friend with me on Facebook, it doesn’t matter if you are not because I will explain. This weekend I got more than a little frustrated with Facebook. This was because I realised how very restrictive it can be. These thoughts were brought about as I looked at the pictures I had just had delivered, they were pictures Jonathan and I have taken since we have been together and there was one I had printed so I could frame it. I really like the picture and it’s a nice memory, taken just a month after we first met.
To go with this “marker” I thought it would be nice to update my relationship status to “In a relationship”, not for any other reason than I think it is quite positive to be able to show that there can be life after bereavement, for others who are facing difficult times such as I have endured and for family and friends who are, on times, afraid to comment on how “happy” you seem as they don’t want to cause offence or appear disrespectful to the lost loved one.
To me, a relationship status of “Widowed & In a relationship” would sum up exactly where I am at. Unfortunately Facebook disagrees as I can only be one or the other. Now this puts me in a quandary. I would and could never deny I am a widower but at the same time I don’t want to deny I am in a new relationship. At what point do I make the change from Widower to whatever is next? When I re-marry? When a specific period of time has passed or just when the wind is blowing in the right direction? Even when I do re-marry then surely I would still be a Widower all be it a re-married Widower? Am I holding too much emphasis on that status as the surviving spouse? I think I know the answer, I think it has to be when I am ready to make the switch.
It is true that for a period of time when first bereaved you automatically gain a certain amount of understanding, sympathy and tolerance from people around you, “Oh, he’s just lost his husband.....” etc but I am sure that fades over time as people become used to the new ‘norm’. By keeping my widowed status am I preventing others from moving on? Does this make seeing me with someone else more difficult for them? Already it’s been mentioned that getting used to saying Mark & Jonathan feels odd especially when they are used to Mark & Steve. The top and bottom of all this though is that I don’t have an answer, there is no right and no wrong. I feel truly blessed to have met Jonathan though and, even more so when I see and hear how comfortable he is with Steve and his memory. I even heard him chatting to the Cat yesterday asking her if she missed her Daddy Steve?! Clearly the cat didn’t reply she just continued to purr but I am happy that Steve seems to have become a part of Jonathan’s life too. In an odd sort of way I wish they had both been able to meet, I am sure they would have got on fantastically. My relationship status will change soon, in the meantime I have sent an email to Facebook to note my disappointment and suggest this may need re-thinking.
Back to the new box though. Because I am at this new and exciting point with Jonathan I want to enjoy it and I want to be able to look back and remember all those fun things we did together in the early days. I have bought a new leather box, it’s quite big but, I hope it will fill over the years with many tokens, scraps of paper, tickets or any and all manner of things which will probably have no monetary value just a sentimental one. I’ve started with a few ticket stubs and a photo album which I have started to fill. I’m also taking the time to add dates to the pictures as it can be tiresome to try and recall when a picture was taken. I hope Jonathan will add bits to it too as it’s as much his memory box as mine now.... It is empty and waiting to be filled in just the same way as those megabytes of web space I have waiting to be populated and the blank pages of Jonathan’s diary he has yet to fill.
So that’s it, that’s all about the new box. I will tell you a little about our weekend though before I go. Friday night was lovely, just the two of us and two cats, sat in with dinner, a few drinks, soft music and plenty of chat. On Saturday we got up and after a light breakfast headed out to meet friends for afternoon tea in Manchester. Well, as you may expect, tea led to beer which led to further beer, we stayed out for dinner though and another drink and finally left Manchester after 10.00pm. It was a lovely relaxed and spontaneous day with good company, good food and good drinks too. I am very much looking forward to doing it again. Yesterday was a busy day, we had a late start but a friend called in and met Jonathan then we headed out to see family before coming back so more friends could meet Jonathan. He is becoming somewhat of a tourist attraction, I guess it may be the bunny pictures that did it.... hmmm did I post that here? Well here goes, he will hate it but I think he looks cute!
We relaxed last night and again just sat and chatted over a few drinks. I didn’t want to get up this morning but when I did I was smiling! This was because Jonathan had got up just a few minutes before and showed me his “Alarm Clock Dance”! I have no idea how to explain this but it is suffice to say I have never seen anything like it and it’s the first time in a long time I have chuckled as I got up on a Monday morning.
Well I hope your day has been a good one and I will be back to write again soon.
xxMxx
Monday, 16 April 2012
A busy week, dance routines and big smiles
Phew, hasn't time gone quickly. It's been a week since I posted last. It's been a great week too.
I know in my previous post I eluded to why I have been very happy of late and that happiness and smileyness has continued. and, I hope it will continue for very much longer too.
Back to last week though, on Tuesday Jonathan invited me to see Steps. I knew it would be a late night but, it seemed even later after being woken at 3am to be told my Dad was being taken to hospital with "Chest pains". He's had a heart attack before so obviously your mind thinks the worse. As it turned out it was an angina attack but still, being woken so early meant I was sapped of energy for Steps.
Before I went I would have insisted that I knew very few of their songs and knew none of their dance routines. By the end of the concert, whilst I could re-confirm I knew none of the dance routines, I knew all of their songs, well at very least all of those they sung in concert.
It was a lovely night and it was fun to see that Jonathan knew all of the routines as well as the words. I watched in near amazement of every perfectly choreographed move and gesture, as I said though it was also fun to see. In part because his energy and enthusiasm was extremely contagious!
My week seemed to be taking a turn for the worse on Wednesday when I received a call from home saying there was water leaking in through the bedroom ceiling so off I went to sort that too. On Thursday I was up and out early for a breakfast meeting, it started at 7.15 which is really not when I function best, I prefer evenings. I had a full day though of meetings and things to sort for work but, fingers crossed, they will all fall in to place later today ready for an event I am working on tomorrow and Wednesday.
Friday was a long day at work, fighting tiredness from the week I struggled to get through the day, so much so that when I got home I dozed off whilst watching the news. After J arrived home we decided to go out and have a few drinks. We headed off into town and had a lovely time. There was no agenda, no plans to meet up with anyone but, we managed to bump into some friends and ended up being out until the early hours of Saturday morning. It was nice not to have an agenda.
Following a late start on Saturday it was nice to see some more friends and then head out for dinner and a browse around the shops before a relaxing night in. I think that has been something we have both enjoyed over recent weeks. The chance to relax with no agenda or timescale to work to.
On Sunday we had another lazy morning but then called to visit family, and friends before heading into Manchester to attend a party. Steve's Mum got to meet Jonathan along with a few other friends too, so again it was just nice to be able to spend time together with no agenda. We ended up snuggling on the sofa again last night with a bottle of wine and a film before a reasonable early night. I was up for 5.30 this morning so it wasn't a late night.
I think, in part, that’s what has been nice about the past few weeks, the chance to sit, relax and do very little other than being happy in the company of someone that makes you smile. It sounds sickly sweet, I suppose it is, but it's still been nice. We've made each other happy and I hope it continues for a very long time to come. There are still a lot of things to sort for us both but those will sort themselves out in time, for now we're just enjoying life.
Well, that’s about all my news for now, I'm off to sort a few more things before I dash off to collect some things from a supplier for work so I will write soon, I hope you've had or are having a lovely day wherever you are and whatever you're up to.
Xx M xX
I know in my previous post I eluded to why I have been very happy of late and that happiness and smileyness has continued. and, I hope it will continue for very much longer too.
Back to last week though, on Tuesday Jonathan invited me to see Steps. I knew it would be a late night but, it seemed even later after being woken at 3am to be told my Dad was being taken to hospital with "Chest pains". He's had a heart attack before so obviously your mind thinks the worse. As it turned out it was an angina attack but still, being woken so early meant I was sapped of energy for Steps.
Before I went I would have insisted that I knew very few of their songs and knew none of their dance routines. By the end of the concert, whilst I could re-confirm I knew none of the dance routines, I knew all of their songs, well at very least all of those they sung in concert.
It was a lovely night and it was fun to see that Jonathan knew all of the routines as well as the words. I watched in near amazement of every perfectly choreographed move and gesture, as I said though it was also fun to see. In part because his energy and enthusiasm was extremely contagious!
My week seemed to be taking a turn for the worse on Wednesday when I received a call from home saying there was water leaking in through the bedroom ceiling so off I went to sort that too. On Thursday I was up and out early for a breakfast meeting, it started at 7.15 which is really not when I function best, I prefer evenings. I had a full day though of meetings and things to sort for work but, fingers crossed, they will all fall in to place later today ready for an event I am working on tomorrow and Wednesday.
Friday was a long day at work, fighting tiredness from the week I struggled to get through the day, so much so that when I got home I dozed off whilst watching the news. After J arrived home we decided to go out and have a few drinks. We headed off into town and had a lovely time. There was no agenda, no plans to meet up with anyone but, we managed to bump into some friends and ended up being out until the early hours of Saturday morning. It was nice not to have an agenda.
Following a late start on Saturday it was nice to see some more friends and then head out for dinner and a browse around the shops before a relaxing night in. I think that has been something we have both enjoyed over recent weeks. The chance to relax with no agenda or timescale to work to.
On Sunday we had another lazy morning but then called to visit family, and friends before heading into Manchester to attend a party. Steve's Mum got to meet Jonathan along with a few other friends too, so again it was just nice to be able to spend time together with no agenda. We ended up snuggling on the sofa again last night with a bottle of wine and a film before a reasonable early night. I was up for 5.30 this morning so it wasn't a late night.
I think, in part, that’s what has been nice about the past few weeks, the chance to sit, relax and do very little other than being happy in the company of someone that makes you smile. It sounds sickly sweet, I suppose it is, but it's still been nice. We've made each other happy and I hope it continues for a very long time to come. There are still a lot of things to sort for us both but those will sort themselves out in time, for now we're just enjoying life.
Well, that’s about all my news for now, I'm off to sort a few more things before I dash off to collect some things from a supplier for work so I will write soon, I hope you've had or are having a lovely day wherever you are and whatever you're up to.
Xx M xX
Monday, 19 March 2012
A bad decision or a way to de-stress?
I really don't know if it was a bad decision or not. I didn't plan to do it and I suppose even though I knew it was there and what was in it but I just did it anyway. I suppose maybe my sub conscious needed it.
I was thoughtful on Sunday morning. I realised I needed to earn more. This isn't through want but necessity. As a rise at work is highly unlikely, the chances of a lottery win remote and there are no reserves to draw on then I need to work more. Life back on the road working the cabaret circuit again is not really an option, my costumes have gone and, whilst I am fortunate enough to have the skills and tools to make more I really don't want to. I'm not sure what I'll look for but I need a part time evening and/or weekend job.
Following on from that train of though I busied myself ironing and sorting and photographing stuff for eBay. This, between doing chores such as sorting the washing.
It was then it caught my attention. Steve's memory box. It wasn't his per se but it is full of his stuff that I've put together in a nice red leather trunk since he died. That is what I was wondering about in my opening paragraph.
I'm sure they are lovely memories for them of Steve but for me I just see the smiles and wonder what it's all about, life that is. The smiles give no indication of the future how cruel it can be. It's tough and there are a lot of questions. Some people find answers in religion and others have different reasoning. I don't need answers though but yet I still wonder why.
The picture is Steve and his Aunt. She passed away on New Years Eve 2009 with Cancer. Stephens Uncle was also claimed by Cancer a few months before he was born and then My Steve too. Why do bad things happen to nice people? Obviously I'd be biased toward Steve but his Aunt was lovely too, so warm and friendly and a real lady. Obviously I never met his Uncle but I have no reason to suppose he was any different. There is no answer though, these are just things that make me think.
After I'd shed a few tears I got on with what I needed to do and I sort of felt better. A lot less worried with a better outlook really. I was still emotional and thoughtful but it made me realise that despite my positivity and polished facade sometimes things do still get to me. Perhaps my guilty feelings about Mothers Day and thinking about other peoples losses was what did it. For the most part I can hide from my own feelings but am often moved by other peoples journeys. Still, I suppose it did me good to have a reality check.
Today has been a busy day, there's lots happening at work so I've been concentrating hard on the work I've been doing for most of the day. I've enjoyed it, oddly. Yes, I suppose deep down I am one of those people who says they would still work even if they won millions on the lottery. I may do a different job or work in a different way but I'd struggle to do nothing for a sustained period of time.
Anyway, it's time for bed, reasonably early for me too. I must be getting old! Oh, and before I sign off please share my blog, if you got here via Facebook or Twitter please Share or Tweet.
Thank you and Bye for now,
M
Tuesday, 22 November 2011
Tea.
Yes it's an odd one isn't it. Lately, I'd say over the past 4 or 5 weeks or so I have been drinking a lot more Tea, (I have been drinking a lot more wine too but that's another story). Right now though I have a large mug of tea at hand.
I've taken to making myself a cuppa before bed and taking it with me to bed. by the time I settle it's at just the right temperature. This may not seem odd for anyone else but it does for me and it brings back memories too. Happy memories.
I've taken to making myself a cuppa before bed and taking it with me to bed. by the time I settle it's at just the right temperature. This may not seem odd for anyone else but it does for me and it brings back memories too. Happy memories.
As you know Steve and I worked most weekends in addition to our day jobs as cabaret artiste's, Drag Queens to be precise.
Many weekends we'd not return home until after 3am sometimes it would be approaching 6am depending how far away the gig was. It started as a joke between us when people said, "Oooh I bet you can't wait to finish work so you can go and party too..." we would always say how we were looking forward to finishing, going home and having a nice cup of tea and a slice of toast before bed.
It sort of became a ritual for us. We'd go to our dressing room and take our costumes / makeup or both off then I'd get in to the shower whilst Steve filled the kettle, fetched our bathrobes and got the cups ready etc. by the time he had done that, (and fed the cats usually), then I'd be out of the shower. As I dried myself he'd be undressing and getting in the shower so, by the time I had got in to my robe and finished making the tea and toast Steve would be out of the shower too and ready to sit down with me for a well earned cuppa!
We'd spend a while sitting and chatting and reflecting on the night. Critiquing our own performances or bitching about whoever or whatever had annoyed us that night or sharing the laughs we'd had through the night.
I miss that. I miss the performing too but with Steve it was all so easy. We worked well as a couple on and off stage. We formed a real partnership and I could always rely on him to be there for me, being supportive, helping and contributing in all ways. From helping prep food for dinner through to helping change the duvet or even the more mundane things like helping tidy up, choose presents or any other jobs that may need doing at any time. I have to do those alone now. I am realising more and more I cannot achieve on my own what Steve and I would achieve together.
Tonight I haven't stopped. Sitting to write this is the first rest I have had. I needed to sort through my bureau and sort through another cupboard this evening so, as soon as I got in I started packing up my craft stuff and sorting through a huge pile of paperwork.
It's both therapeutic and difficult. Obviously there is still a lot of Steve's stuff in there so I have had to sort that too. Some stuff to go to his memory box, some stuff to go with all the documents or papers I have generated or needed or had to deal with since his death and of course some things which just needed to be destroyed.
I wanted to do so much more with my evening tonight, I wanted to catch up with a friend and hear all about her new car and also speak to another whose call I missed yesterday plus a whole list of other things too but as usual I didn't get through everything on my list.
I'm tired now and have a long day ahead tomorrow so my bed is calling me, (which reminds me I wanted to put fresh linen on the bed tonight too). Oh dear... Perhaps I will do it tomorrow... time permitting.
Till then, goodnight,
Mark x
Thursday, 10 November 2011
Me Me Me, Busy Busy Busy and Chrimbo is coming...
Phew, I can't believe it's been a week but at the same time I have done SOOO much i can't believe it is only a week.
Firstly and most importantly, I have re-read Steve's blog from this week last year, it's made me smile, just hearing his voice in his blog really is comforting. It wasn't a great time for him but theres no self pity. Amazing really. Despite his terminal diagnosis he never whinged. Thats something the "friend" who has been trying to cause me stress this week would do well to remember. A few people know to whom I am referring and those that don't really don't need to worry. Just join me in smiling when you think of how Stephen never stopped smiling and never lost his sense of humour.
Since last week I have been SO busy. It's good I guess. On Friday a friend came to visit, it was great to see him. He seems quite well although I was a little concerned for him healthwise but I'm sure he is adult enough to take care of himself. We didn't get to chat for long but hopefully we can meet up for dinner or coffee soon. We have never been "high maintenance" friends, we just catch up as and when we can and it's great. He was also my "wingman" after Steve died whilst I arranged the funeral etc, in part my level head. Something Steve had always been. I will always be grateful for that.
On Saturday I was up early, I went for a walk along the canal for a few hours with the camera and really enjoyed the fresh air,the photos and seeing how different life is on the canal on a Saturday morning, SO much different to being in the city centre. It was real ME time and I enjoyed it.
there were quite a few bits to add and remove and lots of screws to remember the location of
but with grilles, and accent added I replaced the bumper
and added chrome vents and coded fender strakes to the wing.
I guess now I should "fess up" that I am actually a time served mechanical engineer. A four year apprenticeship with the ministry of defence and time spent "in industry" come in handy occasionally. Not the sort of background you expect for a gay and certainly not for a drag queen.
Firstly and most importantly, I have re-read Steve's blog from this week last year, it's made me smile, just hearing his voice in his blog really is comforting. It wasn't a great time for him but theres no self pity. Amazing really. Despite his terminal diagnosis he never whinged. Thats something the "friend" who has been trying to cause me stress this week would do well to remember. A few people know to whom I am referring and those that don't really don't need to worry. Just join me in smiling when you think of how Stephen never stopped smiling and never lost his sense of humour.
Since last week I have been SO busy. It's good I guess. On Friday a friend came to visit, it was great to see him. He seems quite well although I was a little concerned for him healthwise but I'm sure he is adult enough to take care of himself. We didn't get to chat for long but hopefully we can meet up for dinner or coffee soon. We have never been "high maintenance" friends, we just catch up as and when we can and it's great. He was also my "wingman" after Steve died whilst I arranged the funeral etc, in part my level head. Something Steve had always been. I will always be grateful for that.
On Saturday I was up early, I went for a walk along the canal for a few hours with the camera and really enjoyed the fresh air,the photos and seeing how different life is on the canal on a Saturday morning, SO much different to being in the city centre. It was real ME time and I enjoyed it.
Afterwards I did some shopping then ended up in for the evening with friends andthe X Factor. Whilst watching, chatting and drinking wine I also spent time being creative and making bracelets
On Sunday I spent the morning busy online then late morning and early afternoon busy cooking. I made some beautiful carrot soup with roast peppers and onions, it was lovely. I also busied myself making a roast dinner too. All very nice even if I do say so myself. In the afternoon I popped in to Manchester to collect another friend from the train station who was staying for a few days, strangely i managed to get lost near the train station.... I was avoiding parking charges by driving around the block but took a few wrong turnings. It turned out OK in the end though.
On Monday T and I had to go to Liverpool and that turned out good too. We also called in to lay flowers at the grave of another member of our Brain Tumour community. It was sad. I felt Steve with us a lot on Monday, on the way to Liverpool the John Miles song, "Music was my first love" came on the radio. It was a song played at Steves funeral. On the way to the cemetary the Take That song "eight letters" came on the radio, the song mentions, eight letters, three words, one meaning..... Steve and I always used to say 831 and the response was always 8312.... think about it, eight letters, three words one meaning.... I LOVE YOU. The first time I heard the song it took me by surprise and made me tearful, not so much now but it does make me mindful of him. Our 831 came long before the Take That song.
On Tuesday I got up at a reasonable time and decided to fit the "shiny bits" I have bought for my car. Stainless steel grilles for the lower openings in the front bumper, a stainless steel 'rotary accent' for the front of the car, chromed side vents, fender strakes and colour coded repeater lights for the side of the car. Quite a list really.
It meant I had to remove the front bumper of the car, lots of nuts and bolts etc. Ihere was much concern from my facebook family. A gay doing mechanical type stuff. A drag queen getting their hands dirty? Yep, I really didn't conform to type.
The bumper had to be removed along with fog lights etcthere were quite a few bits to add and remove and lots of screws to remember the location of
but with grilles, and accent added I replaced the bumper
and added chrome vents and coded fender strakes to the wing.
I guess now I should "fess up" that I am actually a time served mechanical engineer. A four year apprenticeship with the ministry of defence and time spent "in industry" come in handy occasionally. Not the sort of background you expect for a gay and certainly not for a drag queen.
So, if we add in the other things I have worked on this week..... last night I decided to "trim" the heart decorations I have ready for my christmas tree this year. You will recall I have stuck toa hearts theme but am adding in some tartan. this was last nights activity. I've done about 3 dozen so far and have almost as many more to do.
I am enjoying being creative, both for my own Christmas and for others. Last year Steve and I decided to make some handmade christmas gifts, some were lucky enough to get them. Early this year Steve decided he wanted to make gifts again this year, not all gifts but just some and really so that the gifts were truly personal, created and given with that specific person in mind. I am of course planning on fulfilling his wishes but, with just me on the production line the pressure is on to meet the deadline. Pah, sleep is for losers anyway!
On top of all that some of you may recall Steve and I visited some friends in Norfolk in February this year. Whilst there Steve bought some wool he liked. He had seen some sweaters he liked and, instead of him buying one, his Mum said she'd like to knit one for him, he just needed to provided the wool and pattern. It's surprising how costly it is to go retro and home made but he liked the idea of having something unique.
Long story short, as you guessed, he didn't get his sweater, (who needs a sweater in the summer? Remember he passed in June). Now I am on a mission to make sure the wool he chose is being put to good use. With my plan to fulfil his dream and go and live aboard a narrowboat I anticipate the evenings can or will be chilly. The wool will be used to knit a throw for the sofa or bed when I am on the boat. There's no better time to start than the present so, afteran hour of knitting, tonight I can say I have made a start.
So, if I re-cap on the "crafty projects" I have ongoing at the moment I have, sewing, knitting, jewellery making, photography, customising chrimbo decs, re-upholstering chairs, upcycling my favourite items of Steve's clothing, website creation & development and "pimping my ride" to name but a few which add on to the usual things we do such as working, cooking, eating, shopping, socialising, reading, relaxing oh and occasionally sleeping and visiting family and friends.
I don't like to think of myself as a "jack of all trades" as I don't like the second line of that saying but I do like to think of myself as living life to the fullest because I really think I would struggle to fit much more in to my life. I hope Steve is pleased, he inspires me to continue despite any other issues I may have to deal with emotianally, physically or mentally. I now feel I have two lives to live. His and mine. I miss him dearly but thinking of him and having those little reminders of him at the most unexpected times really do lift my spirits and make me smile.
Thanks you Steve and thanks to you too for reading xxx
Mark xxx
Friday, 14 October 2011
Second blog of the day. Happy Anniversary ? ? ?
Yes, this is a second blog because to add it on to my previous one just would not do it justice.
You may have guessed from the title today is anniversary. Not a happy anniversary but memories of happier times with the one person I have loved more than anything or anyone else in the world.
I hope wherever you are Stephen that you are at peace, free from pain and worry and illness. I love you more and more with each passing hour, the pain cuts deeper and my heart feels heavier with each passing day. You were the best thing that ever happened to me, you made every day with you a happy one, even when we disagreed you still managed to make me smile and I have never been able to be annoyed at you for long, your smile, your cheeky look, your sparkly eyes and your tender touch could make any troubles disappear, I wish you were here to do that now.
On this day in 2006 we became one, joined in the eyes of the law, of our family and of our friends. You said it was the happiest day of your life, a life cut short but a life which touched so many. I've lit some candles for you and us tonight. Not a romantic night in but I know you loved our candlelit nights in.
You've not been far from my thoughts since you passed, this week has been tough and today especially so. I keep smiling though, I don't want to but I know many find my feelings, thoughts and emotions too much to deal with, for them I smile, I spare them the discomfort and hide it from the world, not just today but every day for many weeks now.
It has been nice to come home today, back to our home. I know we had planned to go away this weekend, just escape, the two of us, similar to how we did last year. I remember this weekend last year, getting away to the countryside, no phone signal, an open log fire and plenty of time to talk. Those are happy memories, not a great time because we already had a hint of what may be, but, you smiled and stayed positive and never gave up. You loved the simple things, a walk in the bracing winds, dodging the puddles or wiping the rain from your glasses, the weather never dampened your spirits or your zest for life and I try to keep that in mind to stay happy for you.
I saw this pebble a while ago, thought of you and bought it but it has heightened meaning and sentiment today. I have also been very thoughtful this week about hope. you never gave up hope, it stayed with you and with us to the very end. I am learning to hope again. Hoping for a brighter future, hoping I can learn to live with this pain and hoping that wherever you are you are safe and at peace.
I have noticed this week that Hope is your legacy to me, it is the one thing you have shown me and taught me which will always be with me, no matter how little money I have, how dark the days are or how long the nights are, it will always be there. I saw this "token" on my first day in Cardiff and bought it, I am seeing the hope around me. Hopes for life, for a future and for a new beginning and for that I thank you.
I have re read you blog (click here) tonight from this day last year. I was so proud of you then and still am. The sign is still in the house in the same place you decided to put it where it would cheer you up every morning and give you a spark to light the fire that kept you driving forward. I know I will "get there" eventually, in the meantime though I am continuing your blog. You are still an inspiration to many and even within the last few weeks I have had feedback from people who have found your journey an inspiration and comfort to them, in particular your approach to your treatment.
Once again Happy Anniversary Stephen, thank you for the good times, you will be in my heart forever.
Till we meet again, 831 Pud xxx (Click here)
You may have guessed from the title today is anniversary. Not a happy anniversary but memories of happier times with the one person I have loved more than anything or anyone else in the world.
I hope wherever you are Stephen that you are at peace, free from pain and worry and illness. I love you more and more with each passing hour, the pain cuts deeper and my heart feels heavier with each passing day. You were the best thing that ever happened to me, you made every day with you a happy one, even when we disagreed you still managed to make me smile and I have never been able to be annoyed at you for long, your smile, your cheeky look, your sparkly eyes and your tender touch could make any troubles disappear, I wish you were here to do that now.
On this day in 2006 we became one, joined in the eyes of the law, of our family and of our friends. You said it was the happiest day of your life, a life cut short but a life which touched so many. I've lit some candles for you and us tonight. Not a romantic night in but I know you loved our candlelit nights in.
You've not been far from my thoughts since you passed, this week has been tough and today especially so. I keep smiling though, I don't want to but I know many find my feelings, thoughts and emotions too much to deal with, for them I smile, I spare them the discomfort and hide it from the world, not just today but every day for many weeks now.
It has been nice to come home today, back to our home. I know we had planned to go away this weekend, just escape, the two of us, similar to how we did last year. I remember this weekend last year, getting away to the countryside, no phone signal, an open log fire and plenty of time to talk. Those are happy memories, not a great time because we already had a hint of what may be, but, you smiled and stayed positive and never gave up. You loved the simple things, a walk in the bracing winds, dodging the puddles or wiping the rain from your glasses, the weather never dampened your spirits or your zest for life and I try to keep that in mind to stay happy for you.
I saw this pebble a while ago, thought of you and bought it but it has heightened meaning and sentiment today. I have also been very thoughtful this week about hope. you never gave up hope, it stayed with you and with us to the very end. I am learning to hope again. Hoping for a brighter future, hoping I can learn to live with this pain and hoping that wherever you are you are safe and at peace.
I have noticed this week that Hope is your legacy to me, it is the one thing you have shown me and taught me which will always be with me, no matter how little money I have, how dark the days are or how long the nights are, it will always be there. I saw this "token" on my first day in Cardiff and bought it, I am seeing the hope around me. Hopes for life, for a future and for a new beginning and for that I thank you.
I have re read you blog (click here) tonight from this day last year. I was so proud of you then and still am. The sign is still in the house in the same place you decided to put it where it would cheer you up every morning and give you a spark to light the fire that kept you driving forward. I know I will "get there" eventually, in the meantime though I am continuing your blog. You are still an inspiration to many and even within the last few weeks I have had feedback from people who have found your journey an inspiration and comfort to them, in particular your approach to your treatment.
Once again Happy Anniversary Stephen, thank you for the good times, you will be in my heart forever.
Till we meet again, 831 Pud xxx (Click here)
Monday, 19 September 2011
Help! Please......
If you are a regular reader you will know Steve's friend and colleague, Andrew, has just taken part in The Great North Run in aid of Christies Hospital in memory of Stephen.
He set a £500 target and is VERY close to this, please please please if you can spare a few pounds please sponsor him to help him reach his target. He has done fantastically well and Steve would be VERY proud of him and that he has done the run in Steve's name.
Andrew is not an athlete so this really has been an achievement for him. Well done Andrew and please help if you can by following this link: http://www.justgiving.com/andrewcroston85
I have been reading Steves blog lately from last year. Much of it is familiar to me and the significant dates seem to be etchen in my mind. This time last year Steve was worrying about his forthcoming surgery, here's what he had to say about it: http://troubleblogging.blogspot.com/2010/09/update.html
Those days are clear in my mind but, Steve's positive attitude bewildered me. I didn't understand but, I could not make any criticism. He was offered a chance to help beat this disease and he grabbed it with both hands. Think about that as you wonder whether it is worth forsaking the last few tablets on your course of anti biotics in favour of a night out or a few glasses of wine.
If you are offered a chance, whether that is of health or otherwise then take it. Some people don't get chances or choices so use yours wisely.
On learning of his diagnosis Steve stopped drinking alcohol. there were a few exceptions but few enough to count on one hand and even then at most he would have one or two glasses and no more. Sat here with a glass of wine I feel guilty. Not guilty enough to stop but I am conscious of the differences.
I still miss Steve with every breath I take, every spare moment is consumed with thoughts of him and wishing he could be here. Another hug, another kiss even another night of him stealing the duvet. There is nothing I wouldn't give just to have that one more time.
Tomorrow after work I am driving north to help a friend for a few days. It will be an interesting time I think as I know I am likely to meet some other people dealing with the same Cancer Steve had, a Glioblastoma Multiforme.
The timing is rubbish as this is a month of anniversaries but I doubt there would ever be a "good time" but, best foot forward and all that.
I'm signing off now to go and iron some clothes. I hope to update again in the next few days but don't be alarmed if I don't.
Bye for now xxx
M x
He set a £500 target and is VERY close to this, please please please if you can spare a few pounds please sponsor him to help him reach his target. He has done fantastically well and Steve would be VERY proud of him and that he has done the run in Steve's name.
Andrew is not an athlete so this really has been an achievement for him. Well done Andrew and please help if you can by following this link: http://www.justgiving.com/andrewcroston85
I have been reading Steves blog lately from last year. Much of it is familiar to me and the significant dates seem to be etchen in my mind. This time last year Steve was worrying about his forthcoming surgery, here's what he had to say about it: http://troubleblogging.blogspot.com/2010/09/update.html
Those days are clear in my mind but, Steve's positive attitude bewildered me. I didn't understand but, I could not make any criticism. He was offered a chance to help beat this disease and he grabbed it with both hands. Think about that as you wonder whether it is worth forsaking the last few tablets on your course of anti biotics in favour of a night out or a few glasses of wine.
If you are offered a chance, whether that is of health or otherwise then take it. Some people don't get chances or choices so use yours wisely.
On learning of his diagnosis Steve stopped drinking alcohol. there were a few exceptions but few enough to count on one hand and even then at most he would have one or two glasses and no more. Sat here with a glass of wine I feel guilty. Not guilty enough to stop but I am conscious of the differences.
I still miss Steve with every breath I take, every spare moment is consumed with thoughts of him and wishing he could be here. Another hug, another kiss even another night of him stealing the duvet. There is nothing I wouldn't give just to have that one more time.
Tomorrow after work I am driving north to help a friend for a few days. It will be an interesting time I think as I know I am likely to meet some other people dealing with the same Cancer Steve had, a Glioblastoma Multiforme.
The timing is rubbish as this is a month of anniversaries but I doubt there would ever be a "good time" but, best foot forward and all that.
I'm signing off now to go and iron some clothes. I hope to update again in the next few days but don't be alarmed if I don't.
Bye for now xxx
M x
Friday, 16 September 2011
Am I "really" being selfish?
Before I even start this blog I know it will be a bit of a ramble. I have so many thoughts in my mind that I just need to release them all and then see what’s in there. Not sure if that makes sense but I am being selfish for now and this blog is for me. It’s been a tough week and I need the outlet right now.
Firstly I was reminded by a friend last night about the consultant’s analogy when he diagnosed a “cystic tumour”. He said right now they have just a picture of the tumour, much like an aerial photograph from a plane. They can see the factory (tumour) but they can’t see what that factory makes, i.e. they don’t know if it in benign or cancerous cells being produced.
We bought in to that explanation as it seemed simple and plausible. The consultant might have told us what sort of factory it “appears” to be but he didn’t. This isn’t a criticism at all, the consultant was great and Steve almost immediately bought in to him. He was an older gent, much like a granddad; although too young to be Steve’s granddad he had a friendly face and a nice disposition.
Once Steve’s tumour had been identified, in location and size really as we still didn’t have a name. He chose to give it a name. He called it Clive. Clive the clump and, September 22nd would be Clive’s eviction day. Big Sista, (Steve) had decided it would be evicted from the Big Bruvva house.
Steve’s humour was not appreciated by all. Some thought him disrespectful to not take his condition seriously. Steve and I always joked about his tumour, that’s because that the way he wanted it. He figured in much the same way as the monster under your bed (you imagine as a child), is less scary when you picture it wearing bunny ears and a pink tutu by Steve mocking his tumour then it could not harm him.
Even though Steve is no longer with us I still like to think his tumour didn’t get the better of him. It didn’t rob him of his dignity and, I only have good memories of Steve. I reckon most, if not all, of his family and friends also have good memories as none of them saw him “ill”. He carried on regardless. I knew he was struggling. Struggling to stay awake, struggling to keep on walking or talking or being sociable but, Steve NEVER gave in to it. He would not allow it.
When we went to Scotland in April for his birthday he found the constant walking and sightseeing tiresome and difficult. He never let on. Not to our friends anyway. I knew because I knew Steve but he masked it well. Sometimes I wish he hadn’t. Would we have taken it more slowly if he had been honest? Probably. And that is what Steve DIDNT want. He wanted to be “normal” so he kept quiet and I supported his choice.
The same with work. He wanted to be “normal”. On the Friday before he died he “worked from home” as usual. Just 5 days later he was dead. Nobody understood his desire to work and maintain a routine. I did. He didn’t want to let go of the life he loved and never for one minute did he believe that Cancer would win.
Cancer hasn’t won. Because he didn’t deteriorate or become bedbound he will always remain young and vibrant, happy and cheerful. Even on the Sunday, before he died on Wednesday, he joked with a friend (G) and was happy and positive. He was the last friend really to see Steve “well”.
Re-reading that last paragraph is difficult through the tears but that, I suppose, is why things have been so tough. Steve was never “ill”, he became a little poorly and then died. All within days.
Steve “evicting” his tumour was typical of him. Dumb it down so people didn’t worry. He was petrified, (and so was I) but he never let on to anyone.
I received a phone call today from Steve’s Macmillan nurse, she asked how I was. It took me by surprise but, it was lovely to hear from her. She really cheered Steve up and, although he wasn’t in constant contact with her she remembered him when we saw her at Christies Hospital in the corridor and she made a hugely positive impact on Steve. Just being herself. She is a lovely person and SO easy to speak to. I can’t sing her praises highly enough and, on top of all that she came to Steve’s funeral. She didn’t need to and I wouldn’t have thought any less of her if she didn’t but she came. I owe her a HUGE hug when I see her next.
The phone call was lovely and it turns out she has been meaning to call for a while. I know that feeling, I have been “meaning” to message a few of our friends for a while and have even promised to go for coffee with a few but have not got to do that yet. I have not forgotten but I don’t want to inflict my melancholy on them. Some friends just get that from me anyway although I would prefer them not to, sometimes it is impossible to avoid.
Moving on, forward, upward, positively, all “good” words to make me feel better, I received a text from a friend this week to ask about meeting up this weekend. It was unexpected but VERY much appreciated. I have had lots of offers over the past weeks and months and I love all of our friends for that but I guess it’s just “pot luck” at the moment if they catch me on a good day or bad. If it’s a good day and I say yes then I tend to not go back on that. On a bad day I’d probably decline an invitation, even though I know I run the risk of not being asked again. I just hope people understand that I am trying. I WANT to feel happy but sometimes my heart, sometimes my head and sometimes both say NO!
Fortunately right not I feel the bad days are getting fewer or not quite as deep. The good days have not increased proportionately but, I am now experiencing “neutral” days. That’s a bonus. The “happy” medium between both ends of the scale.
Well, for now that’s about it. I do have loads more swimming around in my head but I guess that’s enough for now.
Love to you, whoever and wherever you are, I know you care because you are reading. I care that you care enough to spend your time reading. Thank you, sending big hugs xxx
Mark x
Firstly I was reminded by a friend last night about the consultant’s analogy when he diagnosed a “cystic tumour”. He said right now they have just a picture of the tumour, much like an aerial photograph from a plane. They can see the factory (tumour) but they can’t see what that factory makes, i.e. they don’t know if it in benign or cancerous cells being produced.
We bought in to that explanation as it seemed simple and plausible. The consultant might have told us what sort of factory it “appears” to be but he didn’t. This isn’t a criticism at all, the consultant was great and Steve almost immediately bought in to him. He was an older gent, much like a granddad; although too young to be Steve’s granddad he had a friendly face and a nice disposition.
Once Steve’s tumour had been identified, in location and size really as we still didn’t have a name. He chose to give it a name. He called it Clive. Clive the clump and, September 22nd would be Clive’s eviction day. Big Sista, (Steve) had decided it would be evicted from the Big Bruvva house.
Steve’s humour was not appreciated by all. Some thought him disrespectful to not take his condition seriously. Steve and I always joked about his tumour, that’s because that the way he wanted it. He figured in much the same way as the monster under your bed (you imagine as a child), is less scary when you picture it wearing bunny ears and a pink tutu by Steve mocking his tumour then it could not harm him.
Even though Steve is no longer with us I still like to think his tumour didn’t get the better of him. It didn’t rob him of his dignity and, I only have good memories of Steve. I reckon most, if not all, of his family and friends also have good memories as none of them saw him “ill”. He carried on regardless. I knew he was struggling. Struggling to stay awake, struggling to keep on walking or talking or being sociable but, Steve NEVER gave in to it. He would not allow it.
When we went to Scotland in April for his birthday he found the constant walking and sightseeing tiresome and difficult. He never let on. Not to our friends anyway. I knew because I knew Steve but he masked it well. Sometimes I wish he hadn’t. Would we have taken it more slowly if he had been honest? Probably. And that is what Steve DIDNT want. He wanted to be “normal” so he kept quiet and I supported his choice.
The same with work. He wanted to be “normal”. On the Friday before he died he “worked from home” as usual. Just 5 days later he was dead. Nobody understood his desire to work and maintain a routine. I did. He didn’t want to let go of the life he loved and never for one minute did he believe that Cancer would win.
Cancer hasn’t won. Because he didn’t deteriorate or become bedbound he will always remain young and vibrant, happy and cheerful. Even on the Sunday, before he died on Wednesday, he joked with a friend (G) and was happy and positive. He was the last friend really to see Steve “well”.
Re-reading that last paragraph is difficult through the tears but that, I suppose, is why things have been so tough. Steve was never “ill”, he became a little poorly and then died. All within days.
Steve “evicting” his tumour was typical of him. Dumb it down so people didn’t worry. He was petrified, (and so was I) but he never let on to anyone.
I received a phone call today from Steve’s Macmillan nurse, she asked how I was. It took me by surprise but, it was lovely to hear from her. She really cheered Steve up and, although he wasn’t in constant contact with her she remembered him when we saw her at Christies Hospital in the corridor and she made a hugely positive impact on Steve. Just being herself. She is a lovely person and SO easy to speak to. I can’t sing her praises highly enough and, on top of all that she came to Steve’s funeral. She didn’t need to and I wouldn’t have thought any less of her if she didn’t but she came. I owe her a HUGE hug when I see her next.
The phone call was lovely and it turns out she has been meaning to call for a while. I know that feeling, I have been “meaning” to message a few of our friends for a while and have even promised to go for coffee with a few but have not got to do that yet. I have not forgotten but I don’t want to inflict my melancholy on them. Some friends just get that from me anyway although I would prefer them not to, sometimes it is impossible to avoid.
Moving on, forward, upward, positively, all “good” words to make me feel better, I received a text from a friend this week to ask about meeting up this weekend. It was unexpected but VERY much appreciated. I have had lots of offers over the past weeks and months and I love all of our friends for that but I guess it’s just “pot luck” at the moment if they catch me on a good day or bad. If it’s a good day and I say yes then I tend to not go back on that. On a bad day I’d probably decline an invitation, even though I know I run the risk of not being asked again. I just hope people understand that I am trying. I WANT to feel happy but sometimes my heart, sometimes my head and sometimes both say NO!
Fortunately right not I feel the bad days are getting fewer or not quite as deep. The good days have not increased proportionately but, I am now experiencing “neutral” days. That’s a bonus. The “happy” medium between both ends of the scale.
Well, for now that’s about it. I do have loads more swimming around in my head but I guess that’s enough for now.
Love to you, whoever and wherever you are, I know you care because you are reading. I care that you care enough to spend your time reading. Thank you, sending big hugs xxx
Mark x
Monday, 12 September 2011
A way forward
Thats where I am at right now, looking for a way forward. Looking for that elusive new norm. Today has been a mixed day. An interesting meeting today has left me with a lot of mixed emotions and feeling "on edge" about a lot of things. All adding to my stress levels. I'm trying not to dwell on it because I can't afford to let the stress get to me.
In many ways the past 12 months have served to make me stronger. In many other ways they have highlighted my vulnerability.
After Steve's initial diagnosis I recall going out for dinner with his parents and his Uncle. The same Uncle that told him he could stand up and fight his cancer or he could pull the duvet over his head and give in to it. He told us how he was now bullet proof.
We didn't really understand but, as he had lost his Wife to cancer just 9 months previously he explained how the worse thing he could ever imagine or fear had now happened so, whatever else came his way would not be difficult to deal with.
I understand that now as I have lived through and continue to live in my worse nightmare. Being single per'se is not a nightmare, I have been single before and had a very happy and fulfilled life thank you very much. The nightmare comes in that I have lost my soulmate, lost whilst we were very much still in love with each other, lost whilst we were still in our idealistic honeymoon phase.
There seems to be no let up to my grief at the moment. It creeps up and surprises me at the most inconvenient time. This morning driving to work I heard the song "Time to say goodbye", it set me off. it's not a song Steve and I identified with but as soon as it started it too me to the crematorium, stood in front of Steve's coffin with his picture smiling back at me. I stopped tocompose myself. I ended up being about 2 minutes late for work. Not a huge issue but persoanlly frustrating that this had happened. It was a bright morning and I was in a good mood.
I considered earlier today the difference in how I feel, how well I feel I am coping, how well friends think I am coping and how "others" feel I am coping. I am not really bothered about other peoples opinions of how I am managing. I feel I have made a lot of progress, it's still less than three months since Steve died. Seeing the news reports yesterday of the 9/11 memorials and how emotional and upset those families still are after ten years of grieving made me realise my loss and how that makes me feel will be with me for the rest of my life. When people say, "so you're feeling better now?" or as my Aunt said last week, "Oh so you're over it all now" I get angry but, I hope they have seen the reports from yesterday and have realised that grief does not respond to timescales or deadlines. My life has now been changed forever as have as those of Stephen's many friends, as the song says, he has left a handprint on my heart, I am sure there are many other hearts wearing the same print http://animoto.com/play/GkTXS6BMWsRca25Z4Ix1tw
Overall I still feel I am moving forward and making progress, there are good parts of most days and tough parts of every day but all in all I am getting there, wherever "there" may be. Tomorrow I have a productive day planned at work, theres a lot of ideas swimming around in my head, they seem to be coming back slowly but surely and I am looking forward to getting back "up to speed". That doesn't mean forgetting Steve, it just means learning to live in my new situation.
Thats it for tonight, early to bed as tomorrow is a work day. Early to bed doesn't mean sleeping though, I'm still not conquering the whole sleep thing but, at least being in bed I am showing willing.
Goodnight xxx
In many ways the past 12 months have served to make me stronger. In many other ways they have highlighted my vulnerability.
After Steve's initial diagnosis I recall going out for dinner with his parents and his Uncle. The same Uncle that told him he could stand up and fight his cancer or he could pull the duvet over his head and give in to it. He told us how he was now bullet proof.
We didn't really understand but, as he had lost his Wife to cancer just 9 months previously he explained how the worse thing he could ever imagine or fear had now happened so, whatever else came his way would not be difficult to deal with.
I understand that now as I have lived through and continue to live in my worse nightmare. Being single per'se is not a nightmare, I have been single before and had a very happy and fulfilled life thank you very much. The nightmare comes in that I have lost my soulmate, lost whilst we were very much still in love with each other, lost whilst we were still in our idealistic honeymoon phase.
There seems to be no let up to my grief at the moment. It creeps up and surprises me at the most inconvenient time. This morning driving to work I heard the song "Time to say goodbye", it set me off. it's not a song Steve and I identified with but as soon as it started it too me to the crematorium, stood in front of Steve's coffin with his picture smiling back at me. I stopped tocompose myself. I ended up being about 2 minutes late for work. Not a huge issue but persoanlly frustrating that this had happened. It was a bright morning and I was in a good mood.
I considered earlier today the difference in how I feel, how well I feel I am coping, how well friends think I am coping and how "others" feel I am coping. I am not really bothered about other peoples opinions of how I am managing. I feel I have made a lot of progress, it's still less than three months since Steve died. Seeing the news reports yesterday of the 9/11 memorials and how emotional and upset those families still are after ten years of grieving made me realise my loss and how that makes me feel will be with me for the rest of my life. When people say, "so you're feeling better now?" or as my Aunt said last week, "Oh so you're over it all now" I get angry but, I hope they have seen the reports from yesterday and have realised that grief does not respond to timescales or deadlines. My life has now been changed forever as have as those of Stephen's many friends, as the song says, he has left a handprint on my heart, I am sure there are many other hearts wearing the same print http://animoto.com/play/GkTXS6BMWsRca25Z4Ix1tw
Overall I still feel I am moving forward and making progress, there are good parts of most days and tough parts of every day but all in all I am getting there, wherever "there" may be. Tomorrow I have a productive day planned at work, theres a lot of ideas swimming around in my head, they seem to be coming back slowly but surely and I am looking forward to getting back "up to speed". That doesn't mean forgetting Steve, it just means learning to live in my new situation.
Thats it for tonight, early to bed as tomorrow is a work day. Early to bed doesn't mean sleeping though, I'm still not conquering the whole sleep thing but, at least being in bed I am showing willing.
Goodnight xxx
Friday, 9 September 2011
What a day!
Well what a day it has been today. I knew it would be a tough one anyway as it was my first full day in work since Steve's death so it was an early(ish) night last night and three alarms set for this morning, just in case.
I got up no problem and just pottered around slowly, not usual for me as usually when I am working it is a mad flit around to iron clothes, get dressed and get out ASAP but this morning I had loads of time to spare.
I got to the office and got settled in my new place, I was not happy, sat in a draught in a corner on a dodgy desk, I felt like a spare part, like I didn't belong there.
I busied myself with a few things and my mobile rang for the third time, unusually it was my Dad so I answered as he was away with my Mum visiting family in Wales and it's unlike him to call.
After hearing his opening words..... "now don't worry....." I knew I wouldn't like what came next. He proceeded to tell me how my Mum had been driving, (again this was unusual as she rarely drives as my Dad likes to drive) and she has crashed the car, quite badly, and could I give him his insurance company details.
You can imagine how I felt. My heart sunk. If it's not one thing it's another and again, why do I keep hearing the phrase "you don't get sent anything you can't handle...". I was told they had crashed into the central reservation at a junction, I later saw it was a traffic island and it was actually a lamppost that they had crashed in to.
I got the details he needed from the Internet and a few quick calls and sent them through. The Police were called and an Ambulance and I'm relieved there were no serious injuries. The car is another matter.
They tried to move the car but it wasn't for moving, the recovery truck had to come and take it away. It will be delivered home in the next few days and then the insurance assessor will need to view it. They have no idea if it is repairable.
Until the assessor has seen the car they can't get a courtesy car either so, they were left stranded in Wales. Shaken up, with luggage and miles Fromm anywhere.
To cut a long story short they were collected and taken to my Aunt's house and I drove down to collect them, a 400(ish) mile round trip. My first day back to work had been cut short and I got to go for a long drive instead. I am not sure if that was better than a full day in the office.
You will recall though I mentioned I knew today would be a tough one. I didn't have a crystal ball and the first day back wasn't my only concern. Today marks one year since Steve was admitted to hospital.
One year ago today was the first night we had spent apart from each other since we had met six years previously. We had met on a Friday and by the following Thursday Steve had moved in and we lived happily ever after, or at least until 8th September 2010.
Following on from his lengthy assessment the previous day Steve had been asked to return to the hospital at 10am for a CAT scan. He went to work as usual and told his boss he would be an hour or so as the appointment to discuss the results was set for the Friday so he went on the bus to he hospital but, following his scan he was asked to return to the clinic. He did so and was told immediately that he is being admitted. He was shoved into a wheelchair and carted off to the medical assessment unit and given a huge dose of steroid
He was annoyed in particular because he had a mountain of work to complete and felt pissed that he had been forced to sit in a wheelchair. Two minutes before he was well enough to walk to the clinic but now he was not well enough to walk from the clinic to the ward allegedly. He felt fine. The only explanation he was given was that he had a growth behind his left eye.
Steve called me at work, I was shocked to say the least but, as they were still doing tests he reckoned I was best not coming to the hospital until later ithe afternoon as by then he should be ok to go home. He was very wrong.
I of course spent the whole afternoon googling "lump behind the left eye". It came up with all sorts including brain tumours but, the most scary thing I could find then was some sort of condition which meant he would lose one eye. Because if the condition the socket would be damaged too and he would be left with a horrible hole where his eye once was and would have to wear an eyepatch.
This was the worse thing I could see at the time but I sort of figured he could still perform and do all the same things with one eye but his mascara for stage would last double the time. I didn't share this with Steve at the time but I did many months later, we laughed about it afterwards and wished that that was what he had instead.
Later that day it became clear he was staying in hospital, he thought it would be for one night so I came home and packed the necessaries, waited for Steves Mum to arrive as she wanted to come too and took off to hospital with his stuff. He was well, bored and frustrated and scared to be in hospital but otherwise well. We all joked about how he was being dramatic.
He was angry and kept insisting there was nothing wrong but he was just humouring the doctors. Remember, up to now he had not been suffering from any symptoms, a few migraines now and again but he got those as a child and he was in the busiest period of the year at work and was operating two computers at his desk so assumed the migraines were more due to eye strain. A change of prescription was ruled out after the optician had said his current prescription was fine just a few days before.
I remember the journey home from the hospital with Steve's Mum. I shared what I had learned and also mentioned brain tumours. I remember saying, there isn't a lot behind your eye other than your brain so what else can it be? Neither of us wanted to dwell on it.
When I got home some friends called to check on how Steve had been, we had updated people through the day by text. Most of our friends were concerned, there was one notable exception but that's another story.
When I got in I cracked open a bottle of Vodka, I needed a drink. I was home alone so after just one drink I trundled off to bed, my head was swimming with more thoughts that I ever imagined possible. Below is a picture of Steve on his first night in hospital, made to wear a gown so he got the idea he was staying.
This time last year I was settling down to my first night without Steve since meeting him. on getting in to my side of the bed and feeling to cold and empty space next to me I started to cry, then I sobbed, and sobbed and sobbed myself to sleep. I remember crying in to my pillow and saying out loud, "please don't die please don't die please don't die...." and asking what would I do without him.
Re-living this just 12 short months further on feels odd. It's like recalling a film but, I am sat here in bed, alone. I know it is real. I know he has gone. I look at his picture and he smiles at me as he always has, tonight I just can't smile back at him. Just 365 days ago I had my first taste of what life is like now. A cold and lonely bed crying myself to sleep and waking up knowing I have to do it all again tomorrow.
Now you understand why today is a tough day.....
I got up no problem and just pottered around slowly, not usual for me as usually when I am working it is a mad flit around to iron clothes, get dressed and get out ASAP but this morning I had loads of time to spare.
I got to the office and got settled in my new place, I was not happy, sat in a draught in a corner on a dodgy desk, I felt like a spare part, like I didn't belong there.
I busied myself with a few things and my mobile rang for the third time, unusually it was my Dad so I answered as he was away with my Mum visiting family in Wales and it's unlike him to call.
After hearing his opening words..... "now don't worry....." I knew I wouldn't like what came next. He proceeded to tell me how my Mum had been driving, (again this was unusual as she rarely drives as my Dad likes to drive) and she has crashed the car, quite badly, and could I give him his insurance company details.
You can imagine how I felt. My heart sunk. If it's not one thing it's another and again, why do I keep hearing the phrase "you don't get sent anything you can't handle...". I was told they had crashed into the central reservation at a junction, I later saw it was a traffic island and it was actually a lamppost that they had crashed in to.
I got the details he needed from the Internet and a few quick calls and sent them through. The Police were called and an Ambulance and I'm relieved there were no serious injuries. The car is another matter.
They tried to move the car but it wasn't for moving, the recovery truck had to come and take it away. It will be delivered home in the next few days and then the insurance assessor will need to view it. They have no idea if it is repairable.
Until the assessor has seen the car they can't get a courtesy car either so, they were left stranded in Wales. Shaken up, with luggage and miles Fromm anywhere.
To cut a long story short they were collected and taken to my Aunt's house and I drove down to collect them, a 400(ish) mile round trip. My first day back to work had been cut short and I got to go for a long drive instead. I am not sure if that was better than a full day in the office.
You will recall though I mentioned I knew today would be a tough one. I didn't have a crystal ball and the first day back wasn't my only concern. Today marks one year since Steve was admitted to hospital.
One year ago today was the first night we had spent apart from each other since we had met six years previously. We had met on a Friday and by the following Thursday Steve had moved in and we lived happily ever after, or at least until 8th September 2010.
Following on from his lengthy assessment the previous day Steve had been asked to return to the hospital at 10am for a CAT scan. He went to work as usual and told his boss he would be an hour or so as the appointment to discuss the results was set for the Friday so he went on the bus to he hospital but, following his scan he was asked to return to the clinic. He did so and was told immediately that he is being admitted. He was shoved into a wheelchair and carted off to the medical assessment unit and given a huge dose of steroid
He was annoyed in particular because he had a mountain of work to complete and felt pissed that he had been forced to sit in a wheelchair. Two minutes before he was well enough to walk to the clinic but now he was not well enough to walk from the clinic to the ward allegedly. He felt fine. The only explanation he was given was that he had a growth behind his left eye.
Steve called me at work, I was shocked to say the least but, as they were still doing tests he reckoned I was best not coming to the hospital until later ithe afternoon as by then he should be ok to go home. He was very wrong.
I of course spent the whole afternoon googling "lump behind the left eye". It came up with all sorts including brain tumours but, the most scary thing I could find then was some sort of condition which meant he would lose one eye. Because if the condition the socket would be damaged too and he would be left with a horrible hole where his eye once was and would have to wear an eyepatch.
This was the worse thing I could see at the time but I sort of figured he could still perform and do all the same things with one eye but his mascara for stage would last double the time. I didn't share this with Steve at the time but I did many months later, we laughed about it afterwards and wished that that was what he had instead.
Later that day it became clear he was staying in hospital, he thought it would be for one night so I came home and packed the necessaries, waited for Steves Mum to arrive as she wanted to come too and took off to hospital with his stuff. He was well, bored and frustrated and scared to be in hospital but otherwise well. We all joked about how he was being dramatic.
He was angry and kept insisting there was nothing wrong but he was just humouring the doctors. Remember, up to now he had not been suffering from any symptoms, a few migraines now and again but he got those as a child and he was in the busiest period of the year at work and was operating two computers at his desk so assumed the migraines were more due to eye strain. A change of prescription was ruled out after the optician had said his current prescription was fine just a few days before.
I remember the journey home from the hospital with Steve's Mum. I shared what I had learned and also mentioned brain tumours. I remember saying, there isn't a lot behind your eye other than your brain so what else can it be? Neither of us wanted to dwell on it.
When I got home some friends called to check on how Steve had been, we had updated people through the day by text. Most of our friends were concerned, there was one notable exception but that's another story.
When I got in I cracked open a bottle of Vodka, I needed a drink. I was home alone so after just one drink I trundled off to bed, my head was swimming with more thoughts that I ever imagined possible. Below is a picture of Steve on his first night in hospital, made to wear a gown so he got the idea he was staying.
This time last year I was settling down to my first night without Steve since meeting him. on getting in to my side of the bed and feeling to cold and empty space next to me I started to cry, then I sobbed, and sobbed and sobbed myself to sleep. I remember crying in to my pillow and saying out loud, "please don't die please don't die please don't die...." and asking what would I do without him.
Re-living this just 12 short months further on feels odd. It's like recalling a film but, I am sat here in bed, alone. I know it is real. I know he has gone. I look at his picture and he smiles at me as he always has, tonight I just can't smile back at him. Just 365 days ago I had my first taste of what life is like now. A cold and lonely bed crying myself to sleep and waking up knowing I have to do it all again tomorrow.
Now you understand why today is a tough day.....
Monday, 15 August 2011
Must try harder...
Yes I have done my thousand lines saying “I must try harder to blog daily”. Maybe it will work who knows but I am not going to stress about it. I am trying not to stress about a lot of stuff lately but I don’t always win but I always try.
Since I wrote last not a lot has changed, I am sure lots has happened but nothing has changed much. The whole of last week seems a blur really, I am not sure if that’s a good or bad thing but it just is what it is.
On Tuesday Steve’s mum visited as usual, she told me about wanting to throw a party for Steve’s 33rd birthday next year. I’m not convinced. Steve wanted a 33rd birthday party as it would have been significant. Significant because it would mark one month more than the max 18 month prognosis he was given. To have his party without him there seems to me to be rubbing salt into the wound, it would be confirming the doctors right as in he wouldn’t live beyond 18 months, in reality he only just scraped through 9 months. I’m not sure what will happen on that, it’s not for me to say, I’m not comfortable with a party per se but then I don’t have to go. I had planned however to go to a little hotel we found via a recommendation H gave to us, it’s a fun and quirky place, (a bit like Steve) so I might just take myself off there with a few people to drink a quiet toast to Steve, the place is called La Rosa Hotel in Whitby, http://www.larosa.co.uk/hotel/index.html it seems like fun.
On Friday the people from work came to see me again. It is so stressful when they come. I don’t know why, I don’t even understand why but it just is. I want to go back to work but right now the thought of it makes my stomach churn. I guess in part I am concerned that if I go back too soon I could have a meltdown at a wholly inappropriate time or snap at someone I ought not to and end up doing myself and work a dis-service. I am not sure they understand that fully but, I have logged on to my work email today from home to see what’s there.
I didn’t get much work done, because I have over 1200 emails to sort through my mailbox is majorly over limit so I had to wade through some old stuff and delete that first to sort of free up some space. I read a few emails though, I got before I left on the Friday before Steve died, ready for me to sort on the Monday and then a few in the following week where life went on regardless of him lying dying in an intensive care unit.
It felt odd, almost like it was me that had died. I felt like I did when I sorted through Steve’s stuff, almost like trespassing or spying, and these are MY emails.... I logged off after a while; it was making me feel sick so I thought it best to leave it for now.
When people used to say to me “Oh it made me feel sick” I thought it always referred to more of a psychological thing as opposed to a physical symptom but, lately I have come to realise that physical sick feeling exists and it has become all too common in recent weeks and months.
This weekend I have avoided people mainly. Saturday I went out for a run in the car, I went to look at a craft shop, it was stupidly expensive and no real great ideas there. I drove around for a bit but came home not spending any money and having not spoken to anyone. Just the way I wanted it I guess.
Yesterday was a little more positive. I spent the whole day in the garage sorting stuff out. It had become our dressing room whilst we were performing, costumes and props etc all over the place but now it is just full of all sorts. Some of the stuff is things we bought months ago, for new hobbies or ideas we had, they still need to be done and I will do eventually but, there is also a lot of old stage props and bits of costumes out there which need sorting too. I did sort quite a bit though, some useable stuff sidelined for a friend who also performs and makes his own costumes as he can make good use of the stuff there and other bits sidelined for other people too.
I also binned a lot of stuff, costumes and props etc which would have continued to be fine for Steve and to use but no good to anyone else or to sell. I threw hundreds of pounds worth of advertising literature in the bin too, sad but they all had Steve’s number on and as they are for “Trouble” then there will be no future need for them either. It’s sad to see all that money wasted.
In the garage too was all Steve’s coursework for the management course he did last year before he got sick and the current stuff he had been working on when he had to stop work. It was so difficult going through that stuff. Every piece of paper was like a little pin prick to my heart as almost every page had his name on, just seeing his name in print so many times in quick succession sort of took the wind out of my sails. I have decided though. I have kept some of the documents, his certificates and some feedback from others about him, (it’s nice to see how much his staff thought of him), and I have decided the rest will be shredded and made into paper bricks for the fire when we move to a boat. Steve would approve of the “green-ness” of it. Turning unwanted paper into fuel to heat the boat.
The boat at the moment seems to be a million miles away, we haven’t got a buyer for the house yet, I think we will reduce the price further in the coming weeks. I think we all just want out and a fresh start. I really think this house though; being so close to the hospital would make a great house for a developer or for a landlord. With five bedrooms, (potentially a sixth or seventh if one of the lounges and the attic were converted), then this would be great to let out to nurses or young doctors working at the teaching hospital at the end of our road. Each room could be let out for £500 ish a month and the mortgage would only be around £1,000 even if a tiny deposit was paid so there is decent potential for profit if someone has the right approach. I know it is something we could look at too but, Steve and I had just planned to sever ties with the house so that’s what I will do as apart from Steve dying, nothing else has changed.
Anyway, after spending the majority of the day outside, (or at least till 7pm ish). I then came in and cooked some food for myself then went and ironed the bed linen I had washed and dried yesterday. I cleaned and vac’d the bedroom and put the fresh linen on then shower and snuggle in my dressing gown watching an old film, Priscilla, Queen of the Desert http://en.wikipedia.org/wiki/The_Adventures_of_Priscilla,_Queen_of_the_Desert it is a great feel good film and Steve and I would always enjoy a Sunday evening with a film. Well, by the time I had done everything it was 10.30 before I got to start the film but I enjoyed it.
I have been thinking today though how bad I have been lately in keeping in touch with people. I have hardly spoken to anyone for a few weeks. I really ought to make more of an effort and I will, just as soon as I can.
I’m going to sign off for now, I might do a further update later but maybe not. I know I posted an update here over the weekend too, I hope you liked it, http://troubleblogging.blogspot.com/2011/08/how-can-it-be.html I saw it whilst online and it really made me think. I still miss Steve more and more with each passing minute. It’s not getting easier to deal with but I suppose I am getting more used to how it feels. Difficult to explain but I wouldn’t wish these feelings on my worst enemy.
Until next time xxx Mark xxx
Monday, 8 August 2011
A day of thinking
This has not been a bad thing, the thinking has all been about someone. Else's project, someone elsess business idea and someone else's headache and excitement really but, let's start with yesterday.
As you know weekends have really been the toughest part of the week for me, those were the times Steve and I would find fun and interesting things to do, sometimes just shopping or doing nothing but it was with steve so being without him has made then extremely hard.
Yesterday I got up and wondered what to do. I looked at the weather and it was raining so a day out with the camera seemed off limits so I pondered, all this before getting out of bed.
I finally got up and decided I would have a day being creative, I decided some sewing was in order. I finally settled on making a handbag for a friend. It's. Up cycled (new word for recycled) from all sorts of stuff but I spent the largest part of the day on it. It was good distraction therapy because whilst I did think about steve I was too busy to get emotional. It was good therapy really. After that I made a necklace and did a few other things too so all in all a. Very creative day. I spent some time online last night but nothing to speak of so it was off to bed at a reasonable time.
Today I got up and phoned work because they had asked me to call today, I sorted a few other things then showered and got dressed. A friend came for lunch, I made a fish risotto which was lovely then we sat and chatted about her ideas. The plans are huge but, they look achievable as each element of the big idea is quite manageable for her. It looks exciting. We also spoke about a new accolade she has been awarded and how it can be 'used', again this all sounds very "cloak and dagger" but I guess this isn't really the right place to publicise her plans, although her 'thing' is public I don't feel my blog is the right place for it.... I think will understand my reasoning... I. Hope.
This evening I have been speaking to T at BT Buddies about the Corrie storyline about Brain Tumours, its a difficult topic and we each have thoughts on how it could be done better but, the main thing is that the story is running and it is raising awareness and that is all that matters.
Well it is almost bed time here for me, I have been reading a few blogs about brain tumours tonight, I wish I could stop them all as nobody should have to go through what I am going through now and what Steve and I went trough since September, I can't though and it hurts.
Well tomorrow is a new day, I am tying to keep on this upward slope of being OK so fingers crossed for tomorrow.
Goodnight xxx Mark xxx
As you know weekends have really been the toughest part of the week for me, those were the times Steve and I would find fun and interesting things to do, sometimes just shopping or doing nothing but it was with steve so being without him has made then extremely hard.
Yesterday I got up and wondered what to do. I looked at the weather and it was raining so a day out with the camera seemed off limits so I pondered, all this before getting out of bed.
I finally got up and decided I would have a day being creative, I decided some sewing was in order. I finally settled on making a handbag for a friend. It's. Up cycled (new word for recycled) from all sorts of stuff but I spent the largest part of the day on it. It was good distraction therapy because whilst I did think about steve I was too busy to get emotional. It was good therapy really. After that I made a necklace and did a few other things too so all in all a. Very creative day. I spent some time online last night but nothing to speak of so it was off to bed at a reasonable time.
Today I got up and phoned work because they had asked me to call today, I sorted a few other things then showered and got dressed. A friend came for lunch, I made a fish risotto which was lovely then we sat and chatted about her ideas. The plans are huge but, they look achievable as each element of the big idea is quite manageable for her. It looks exciting. We also spoke about a new accolade she has been awarded and how it can be 'used', again this all sounds very "cloak and dagger" but I guess this isn't really the right place to publicise her plans, although her 'thing' is public I don't feel my blog is the right place for it.... I think will understand my reasoning... I. Hope.
This evening I have been speaking to T at BT Buddies about the Corrie storyline about Brain Tumours, its a difficult topic and we each have thoughts on how it could be done better but, the main thing is that the story is running and it is raising awareness and that is all that matters.
Well it is almost bed time here for me, I have been reading a few blogs about brain tumours tonight, I wish I could stop them all as nobody should have to go through what I am going through now and what Steve and I went trough since September, I can't though and it hurts.
Well tomorrow is a new day, I am tying to keep on this upward slope of being OK so fingers crossed for tomorrow.
Goodnight xxx Mark xxx
Saturday, 6 August 2011
An absent neutral week
I know I have been lacking in the blog area this week. Perhaps my mind has been am little absent too. It's not been a significant week, neither significantly good or significantly bad just a collection of days.
That's not meant negatively but maybe neutrally. That's probably the best explanation for my mood the last week and I am ok with it, it is better than being on the roller coaster. Don't get me wrong I have had a few 'moments' this week but that's ok.
On Tuesday this week J came and stopped, we went out for lunch and we wandered around the shops, we each bought just one item so hardly a huge spree but it was the first time I have been to a busy shopping area since Steve died so it can be seen as a step forward.
On Wednesday I didn't get up to much, I was going to venture out with the camera and did set off in the car but came home, I just didn't feel like it.
Thursday was again a bit of a quiet day but H came to see me in the eve and we had a good old natter. Also, if you remember me asking you to say a prayer or send healing thoughts for a friends nephew well it's her nephew. I am pleased to say he is doing ok, he is not fully recovered but he is out of intensive care so he is heading in the right direction. He's only 13 so please keep sending all your positive thoughts etc to Luke xxx
Friday was not so bad either, I had an appointment in the afternoon so I got up and had a leisurely morning then went to see G afterwards. It's not all good there either unfortunately, N's Dad is poorly, he has been for some time but he is in hospital again and the whole family are concerned. I feel for them a lot as they have seen Steve go through his journey and have watched me struggle with him dying and now they have this on top. It's not fair but life seldom is, and don't I know it.
Last night I was up until really late, in fact till the early hours of this morning chatting on the phone, it was a good to talk though, we were discussing ideas for raising awareness of brain tumours, I did a couple of pictures this week for #braintumourthursday on twitter, just some pics of Steve but with a hard hitting message.
They may seem harsh, I had a long think before, during and after I did them but, I decided if they stop someone and make them think then they have done their job and Steve would be pleased to know he has helped raise awareness of this cruel disease, I've recently learned of a few children with the same disease. It sickens me to know what those families will be going through now and at some point in the future.
Today has not been too bad. I got up late, not late considering I was awake until after 4am but later than usual. I showered and went in to town. I only needed to bank a cheque and post a letter. The bank was shut and I had missed the last post for today for the letter but it will go on Monday.
I thought about having a look around the shops, I went in and wandered about for a bit but came away empty handed. I realised there is nothing I need to buy or want to buy so I came home empty handed.
I had a call this afternoon from a friend about something else she has been working on, it will be great news but she has to keep it a secret for now so I will too but, eventually you will know ALL as it really is good news.
This evening I have sat here alone, not doing anything in particular but, as the weekends have been the most difficult bits of my week then I think I am doing ok so far, I'm not on a downer, that's not due to alcohol anaesthetic either as I haven't had any but it is just because I can see a light at the end of the tunnel, I just hope nobody turns it off before I get near the end!
I'm not sure what tomorrow will bring, loads to do but the weather and my motivation when I wake up will no doubt decide for me. Here's another pic I did, you can see why the debate with myself, hard hitting and hopefully they can be used to raise awareness of brain tumours for http://www.btbuddies.org.uk/
Goodnight xxx Mark xxx
That's not meant negatively but maybe neutrally. That's probably the best explanation for my mood the last week and I am ok with it, it is better than being on the roller coaster. Don't get me wrong I have had a few 'moments' this week but that's ok.
On Tuesday this week J came and stopped, we went out for lunch and we wandered around the shops, we each bought just one item so hardly a huge spree but it was the first time I have been to a busy shopping area since Steve died so it can be seen as a step forward.
On Wednesday I didn't get up to much, I was going to venture out with the camera and did set off in the car but came home, I just didn't feel like it.
Thursday was again a bit of a quiet day but H came to see me in the eve and we had a good old natter. Also, if you remember me asking you to say a prayer or send healing thoughts for a friends nephew well it's her nephew. I am pleased to say he is doing ok, he is not fully recovered but he is out of intensive care so he is heading in the right direction. He's only 13 so please keep sending all your positive thoughts etc to Luke xxx
Friday was not so bad either, I had an appointment in the afternoon so I got up and had a leisurely morning then went to see G afterwards. It's not all good there either unfortunately, N's Dad is poorly, he has been for some time but he is in hospital again and the whole family are concerned. I feel for them a lot as they have seen Steve go through his journey and have watched me struggle with him dying and now they have this on top. It's not fair but life seldom is, and don't I know it.
Last night I was up until really late, in fact till the early hours of this morning chatting on the phone, it was a good to talk though, we were discussing ideas for raising awareness of brain tumours, I did a couple of pictures this week for #braintumourthursday on twitter, just some pics of Steve but with a hard hitting message.
They may seem harsh, I had a long think before, during and after I did them but, I decided if they stop someone and make them think then they have done their job and Steve would be pleased to know he has helped raise awareness of this cruel disease, I've recently learned of a few children with the same disease. It sickens me to know what those families will be going through now and at some point in the future.
Today has not been too bad. I got up late, not late considering I was awake until after 4am but later than usual. I showered and went in to town. I only needed to bank a cheque and post a letter. The bank was shut and I had missed the last post for today for the letter but it will go on Monday.
I thought about having a look around the shops, I went in and wandered about for a bit but came away empty handed. I realised there is nothing I need to buy or want to buy so I came home empty handed.
I had a call this afternoon from a friend about something else she has been working on, it will be great news but she has to keep it a secret for now so I will too but, eventually you will know ALL as it really is good news.
This evening I have sat here alone, not doing anything in particular but, as the weekends have been the most difficult bits of my week then I think I am doing ok so far, I'm not on a downer, that's not due to alcohol anaesthetic either as I haven't had any but it is just because I can see a light at the end of the tunnel, I just hope nobody turns it off before I get near the end!
I'm not sure what tomorrow will bring, loads to do but the weather and my motivation when I wake up will no doubt decide for me. Here's another pic I did, you can see why the debate with myself, hard hitting and hopefully they can be used to raise awareness of brain tumours for http://www.btbuddies.org.uk/
Goodnight xxx Mark xxx
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