A bad decision or a way to de-stress?

I really don't know if it was a bad decision or not.  I didn't plan to do it and I suppose even though I knew it was there and what was in it but I just did it anyway. I suppose maybe my sub conscious needed it.

I was thoughtful on Sunday morning.  I realised I needed to earn more.  This isn't through want but necessity.  As a rise at work is highly unlikely, the chances of a lottery win remote and there are no reserves to draw on then I need to work more. Life back on the road working the cabaret circuit again is not really an option, my costumes have gone and, whilst I am fortunate enough to have the skills and tools to make more I really don't want to.   I'm not sure what I'll look for but I need a part time evening and/or weekend job.  

Following on from that train of though I busied myself ironing and sorting and photographing stuff for eBay.  This, between doing chores such as sorting the washing.

It was then it caught my attention.  Steve's memory box.  It wasn't his per se but it is full of his stuff that I've put together in a nice red leather trunk since he died.  That is what I was wondering about in my opening paragraph.  

I sat on the bed and opened it.  I started to read cards he'd received when he was first admitted to hospital, that's 18 months ago now.  So many get well wishes.  Then the tears started and I couldn't stop them and, I couldn't stop reading either.   I didn't read them all, I got side tracked with photographs, photos of Steve as a child, with his Mum, his Granny, his Dad and Brother too.

I'm sure they are lovely memories for them of Steve but for me I just see the smiles and wonder what it's all about, life that is.  The smiles give no indication of the future how cruel it can be.  It's tough and there are a lot of questions.  Some people find answers in religion and others have different reasoning.  I don't need answers though but yet I still wonder why.

The picture is Steve and his Aunt.  She passed away on New Years Eve 2009 with Cancer.  Stephens Uncle was also claimed by Cancer a few months before he was born and then My Steve too.  Why do bad things happen to nice people?  Obviously I'd be biased toward Steve but his Aunt was lovely too, so warm and friendly and a real lady.  Obviously I never met his Uncle but I have no reason to suppose he was any different.  There is no answer though, these are just things that make me think.

 

After I'd shed a few tears I got on with what I needed to do and I sort of felt better. A lot less worried with a better outlook really.  I was still emotional and thoughtful but it made me realise that despite my positivity and polished facade sometimes things do still get to me.  Perhaps my guilty feelings about Mothers Day and thinking about other peoples losses was what did it.  For the most part I can hide from my own feelings but am often moved by other peoples journeys.  Still, I suppose it did me good to have a reality check.

 

Today has been a busy day, there's lots happening at work so I've been concentrating hard on the work I've been doing for most of the day.  I've enjoyed it, oddly.  Yes, I suppose deep down I am one of those people who says they would still work even if they won millions on the lottery.  I may do a different job or work in a different way but I'd struggle to do nothing for a sustained period of time.

 

Anyway, it's time for bed, reasonably early for me too.  I must be getting old!  Oh, and before I sign off please share my blog, if you got here via Facebook or Twitter please Share or Tweet.

 

Thank you and Bye for now,

M

 

 

 

 

 

  

Valentines Day

It's odd.  The anniversaries seem to come around quickly now.  It's just one year ago today, 13th Feb since we went to stay with Jacqui on her narrowboat in Norfolk before going on to spend a few days with Jayne & Ray and see my Sister and Brother In Law.

We set off on a Sunday and, with the radio on we chatted, laughed, joked and sang all the way there.  On the radio that morning though, a song came on which stopped me in my tracks.  have a listen, (Listen Here) it just said everything at that time and hearing it now is still difficult for me.  I cant believe how different things are right now, and things don't seem to be getting easier.  See here what Steve said about it.

Tomorrow is Valentines Day, there's love all around, red hearts, red roses and a plethora of icky sicky sweet cards.  I was/am probably more romantic than Steve but his way of showing love was special to him.  He always made me smile.  Until he met me he was quite reserved about saying the "L" word, but with me he was different.  I miss that.  Plenty of people still tell me they love me and I know they do but it's not the same.  what I shared with Steve was different to anything I have experienced before and is probably different to anything I will experience in the future.

That brings me on to my future.  I've been thinking a lot lately and the truth is that I have not reached any conclusions.  I have looked at things in my life right now and looked at how I would like my future to look.  I don't know how it will be exactly but I know I just want an honest and quiet life and I want to share happy times with family and friends.  I've thought about friends I've lost touch with and about those who I see regularly, those that are close and those that are far away and I realise some seem to harbour their own agendas.  Some friends make me feel happy just by being there and others leave me wondering what their agenda is, whether there is a sub text or whether I am just a "friend" to make them feel good about themselves. 

This reminded me of one of Steve's pet hates, he was very good at seeing these things and would let it pass unmentioned for a long time before he'd snap and do something about it, like the friend who liked to introduce him as "My Gay friend Steve" like he was some sort of accessory, of course we became almost like premium accessories when we became civil partners..... people eh.

Well there isn't much else for me to rant about here.  As for Valentines day I hope you are lucky enough to spend it with someone you care about and who cares about you and if like me, your Valentine is somewhere else then cherish your yesterday, dream your tomorrow but live your today.

xxx Mark xxx

Breast and testicles are all over the place

It made me smile, it was a comment in Steve's post on this day last year, click here but he is right and nothing has changed.  The figure equates to less than 1%, if you want more info drop me a line or contact  BT Buddies.

Last night as I said I went to bed early and as usual didn't sleep, I watched a film instead, P.S. I Love You which I had downloaded to my iPad.  Well, I managed to get to 13 minutes before the tears came.  they stayed till the end.  I almost flooded my bed!  I am not best placed to say whether it was a good, bad or indifferent film but it touched me.  that's all I will say.  If you have seen it you will understand,if not then reading the synopsis will probably explain. 

Odd as it may seem I felt better for having my meltdown.  I still miss Steve so much and sometimes I just want to be able to grieve for him not cover up my feelings to spare those of others. If one of my tears was enough to bring Steve back for just one second then I know last night alone would have seen him back for a hundred years or more. 

Today has been an OK day.  Work was brief this morning as I had a Doctors appointment.  Nothing too sinister, (for now) just problems with my hands, a course of anti inflammatory though should help and if not I am to go back.  On the plus side it seemed to be nothing major which warrants further investigation or tests... yet.

After that it was back to work.  Another tough day, it's difficult to stay upbeat about it.  I got a lot done though and managed to clear a lot of mail from my inbox so I was pleased with that as I am out of the office after tomorrow until Thursday next week.

Tonight I logged on to the PC as soon as I got in, I had a few things to sort but before I knew it I had a few phone calls with friends catching up, emails, text and facebook messages.  All good stuff.  I have a few calls to return though, messages on my phone from a few days ago have not been returned yet, I know I am failing miserably in the "keep in touch" department but I don't seem to have a minute lately but tonight, although busy, has been good and I have enjoyed it.  I realise soon I need to start making a move to get out more and socialise. Soon though, not now.

Watching that film last night has reminded me of the need to get out and see people or just have people around.  I do want that but sometimes I am just not very good company.   I saw this a few days ago and I think it's spot on...

I have no idea why it is on it's side, I have amended it to be the right way up but it clearly didn't work so it's tilt your head time... sorry.

Another I saw which I also thought was spot on is this:

Again, it struck a chord with me.  On a closing note though all I have to say is thanks again to all my friends for being there, your texts, messages, emails and cards etc which are still arriving are very much appreciated and if you are waiting a call or a visit from me please keep being as patient as you have, I have not forgot but I there is only one of me now to do all the keeping in touch we both used to do.  I have not forgotten you and I know you're all out there.

xxx Love to you all xxx

M x

Love to you all





Second Attempt...

Here goes with another attempt at trying to update my blog from last week, after my short blog last night I am sure you can see my frustration with technology.



Anyway, after I wrote my blog on our anniversary I went to bed, there I cried myself to sleep, I seemed to be crying for hours. I felt alone and lonely, sad the person I wanted to spend the rest of my life with has gone. When we said “till death us do part” I had never realised it would come so soon after.


Saturday 15th was pretty uneventful. On Sunday 16th I was supposed to be going out with a friend, a little like the Three Kings he travelled from afar but not with Gold Frankincense and Myrrh but with White wine, Red wine and Mirth. Also, more like a Queen than a King but you get my drift. We were supposed to go and see another friend’s drag show early evening. I was fine in the morning and early afternoon but then it descended on me, like a cloud of gloom, a melancholy mood which I couldn’t shrug so, not wanting to spoil other peoples fun I decided not to go and to go for a drive instead. If I am honest the drive didn’t help but it meant I was alone and not upsetting anyone else with my miserable mug.


Monday was pretty uneventful from what I remember, just work and home as usual but, on Tuesday J arrived, I cooked and we ended up sat till the wee small hours over a few bottles of wine chatting about all sorts, mainly Steve I guess but, my friend doesn’t seem to mind, he understands as he too has lost a loved one tragically way too soon.


On Wednesday it was work as usual during the day but in the evening we hit the town, well, sort of. I got home from work, freshened up and changed as did J, we then headed in to Manchester for dinner before heading off to see Peter Kay and his Tour That Didn’t Tour Show, it was fab, a real laugh and a much needed tonic. Another friend had been bought tickets and was unable to go so they kindly asked if I’d like to go, I said yes and then decided to ask my friend to come too. It was a real giggle. If I am honest I sometimes don’t get the Peter Kay brand of humour which seems to be shout louder and repeat several times but, on Wednesday I did, he was VERY funny and we both enjoyed a good old laugh. I would like to say my laughter wasn’t tempered by thoughts of Steve but it was, I missed him a lot and we spoke of him too during the interval, Steve would however have been pleased to see us out and about. It was an unexpected but very much appreciated night out and as I have already said, a real tonic.


On Thursday we had a viewing on the house so I had to come home from work early to do the show around, she seemed interested but we have heard nothing yet so will take that she has seen somewhere else preferable. Thursday and Friday were quiet apart from that. On Friday I met with a Friend and we headed out for some retail therapy and a chat, it was nice to have a wander about. On Saturday it was much the same, I met with an old friend, we spent the whole day shopping and chatting, our coffee breaks seemed to go on forever as we sat and chatted. Even though we have not seen each other for a long while it was like we saw each other last week, we had a lovely time and again, it was a real tonic to catch up with her.


Last week I also booked tickets to go on the train to see my Sister, her hubby and some friends in November. The train journey is 5 hours but the drive would be the same, the train is cheaper though and it means I can relax on the journey and arrive fresher than if I had driven. It will be nice to see my sister again as I have not seen here since Steve’s funeral, similarly the friends I will see there too, I’ve not seen them since Steve’s funeral. I am really looking forward to it and, I will be stashing a bottle of Gin in my suitcase when I go as I think a few bevies are in order. I didn’t get to see much of them around the time of the funeral so now, five months on, I think it is about time we raised a glass or several to Stephen, to friends and to the future and whatever it may hold.


Sunday was a good day, I spent it being creative and crafty, it was nice to have some me time which was also creative time.


Yesterday was work as usual and Today I left work and headed in to town to the shops, there was something I wanted but alas, the shop is no longer stocking the item, perhaps I will revert to Amazon. Oh, that’s the other thing too, lots of people have already asked me what I want for Christmas. I can’t comment on their planning as I am also well prepared for Christmas. Instead of saying “I don’t know” I have tried to start a “Wish List” on Amazon, just search my name on Amazon and it should be there somewhere, I don’t quite know how it works but I am told it does. As my birthday comes before xmas though I have already said I want to be boring and have cash for that as there is a modification I want done to the car which the money will come in very useful for and it will be the “finishing touch” to the changes I have made so far.


Well, I think I have covered everything now, before I go though I do just want to say a huge thank you to all my friends and family for all their support. Some of you have been supportive without knowing it and others by not doing much other than just being there of making their presence felt. I really do appreciate and thank all our friends, I’d like to think they know who they are.


Friends are like stars.....

You don’t have to see them to know they are there.



Love to you all,

M x

Second blog of the day. Happy Anniversary ? ? ?

Yes, this is a second blog because to add it on to my previous one just would not do it justice.

You may have guessed from the title today is anniversary.  Not a happy anniversary but memories of happier times with the one person I have loved more than anything or anyone else in the world.

I hope wherever you are Stephen that you are at peace, free from pain and worry and illness.  I love you more and more with each passing hour, the pain cuts deeper and my heart feels heavier with each passing day.  You were the best thing that ever happened to me, you made every day with you a happy one, even when we disagreed you still managed to make me smile and I have never been able to be annoyed at you for long, your smile, your cheeky look, your sparkly eyes and your tender touch could make any troubles disappear, I wish you were here to do that now.

On this day in 2006 we became one, joined in the eyes of the law, of our family and of our friends.  You said it was the happiest day of your life, a life cut short but a life which touched so many.  I've lit some candles for you and us tonight.  Not a romantic night in but I know you loved our candlelit nights in.

You've not been far from my thoughts since you passed, this week has been tough and today especially so. I keep smiling though, I don't want to but I know many find my feelings, thoughts and emotions too much to deal with, for them I smile, I spare them the discomfort and hide it from the world, not just today but every day for many weeks now.

It has been nice to come home today, back to our home.  I know we had planned to go away this weekend, just escape, the two of us, similar to how we did last year.  I remember this weekend last year, getting away to the countryside, no phone signal, an open log fire and plenty of time to talk.  Those are happy memories, not a great time because we already had a hint of what may be, but, you smiled and stayed positive and never gave up.  You loved the simple things, a walk in the bracing winds, dodging the puddles or wiping the rain from your glasses, the weather never dampened your spirits or your zest for life and I try to keep that in mind to stay happy for you.

I saw this pebble a while ago, thought of you and bought it but it has heightened meaning and sentiment today.  I have also been very thoughtful this week about hope.  you never gave up hope, it stayed with you and with us to the very end.  I am learning to hope again.  Hoping for a brighter future, hoping I can learn to live with this pain and hoping that wherever you are you are safe and at peace.
I have noticed this week that Hope is your legacy to me, it is the one thing you have shown me and taught me which will always be with me, no matter how little money I have, how dark the days are or how long the nights are, it will always be there.  I saw this "token" on my first day in Cardiff and bought it,  I am seeing the hope around me.  Hopes for life, for a future and for a new beginning and for that I thank you.

I have re read you blog (click here) tonight from this day last year.  I was so proud of you then and still am.  The sign is still in the house in the same place you decided to put it where it would cheer you up every morning and give you a spark to light the fire that kept you driving forward.  I know I will "get there" eventually, in the meantime though I am continuing your blog. You are still an inspiration to many and even within the last few weeks I have had feedback from people who have found your journey an inspiration and comfort to them, in particular your approach to your treatment. 

Once again Happy Anniversary Stephen, thank you for the good times, you will be in my heart forever.

Till we meet again, 831 Pud xxx (Click here)

A half week update

You seem to be getting updates every few days now.  I will eventually get back in to the swing of it I guess.  Lets start with Thursday. Firstly the same day last year had been Steves first visit to Christies hospital. Here is his blog, click here I remember the visit and I remember how nervous he was, I was too but I kept him calm.  The hospital is quite pleasant really, not like a general hospital, it felt more friendly.  Steve just accepted everything that was told to him but, on this visit we were also asked about "harvesting sperm" just in case Steve wanted children after his treatment.   We explained that gays have still not evolved into child bearing creatures, the nurse giggled and, although we understood she was asking a serious question we politely told her that children had never been a consideration for us.   Anyway, this Thursday as I said I went to see Top Hat with my Mum.  It was a good show.  Not the same as a musical but really good and Tom Chambers who was in Come Dancing played the male lead.  Top Hat was filmed in 1935 and starred Fred Astaire and Ginger Rogers, a classic black and White film.  Apart from anything else it was nice to go out with my Mum. Friday was an ok sort of day.  Work was  busy and stressful, I am conscious that my attention span is still less than it used to be and constant distractions from people in the office and others coming in and out of the office only distract me more so all in all it is annoying me.  I guess I will get back to how I was eventually. On the same day last year Steve had been to have the first part of his mask made for his radiotherapy treatment.  He was nervous about it as he was a little claustrophobic but I was there with him in the room which made him feel more relaxed and afterwards he said it hadn't been anywhere near as bad as he feared it might have been, see what he said click here http://troubleblogging.blogspot.com/2010/10/another-day-over.html Friday evening I popped to the shops, I needed to collect a gift I had order for my Sister for Christmas but when I got there it had not arrived.  I called the order line to check on dispatch date and was told it had been delivered and signed for at my home address!  There was me collecting from store and they had sent it to home.  It was there when I got in.  There's not a lot of stuff to buy now for Xmas which is good.  I might start wrapping soon... Woo! I spent Friday evening curled up on the sofa with a bottle of wine.  It was nice to chill but of course it's then that I miss having Steve around to snuggle up to. Saturday was a busy day.  I got up and relaxed for a bit then went to do my ironing ready for my next gay road trip.  As I'm travelling with friends and they have quite a small car I needed to pack smart and take as little as possible.  I think I managed ok. In the afternoon I got showered and then went out to see another friend I have not seen for some time.  It was good to catch up.  He's due to move soon so he took me to see the new place too.  It looks nice, it's a 1 bed flat but is a really good size and looks like it's in a nice quiet area.  I'll see him again when I get back. On this day last year Steve had been to Christies for an MRI scan.  I had a meeting I couldn't get out of with a friend about a bid she was submitting.  I met Steve later in the day, I remember the feeling of relief seeing him after he had been out alone for the day.  I would never have worried before but he had never had Cancer before.  Here's his blog http://troubleblogging.blogspot.com/2010/10/today-has-been-good-day.html It was tough for me to adjust to the realisation I couldn't wrap Steve in cotton wool and protect him.  I am not sure he ever realised how tough it was to do but I did it.  I hope he didn't notice how much i worried, if he did though he didn't let on.  I vehemently defended his independence when others told him he can't or shouldn't and I know he did appreciate that.  He wanted to live his life as normal as possible, that was truly inspirational to me and many others. Last night, after visiting my friend I popped to the supermarket and picked up a few bits before heading home.  I made a delicious meal and supped a bottle of wine watching X  Factor and meddling with my iPad.  I trundled off to bed at a reasonable time, well, just before 1am.   This morning I got up, packed my bag, bundled my eBay stuff ready to go tomorrow, got ready, had breakfast and waited to be collected.  We set off around 10.30 for our big gay road trip to Wales. Steve and I booked this trip in February for us and two friends.  It was a gift for them for birthday and wedding anniversary, we are staying in the centre of Cardiff for 5 nights and head home on Friday 14th.  For Steve and I it was a chance to be tourists as well as for me to meet up with some old friends. The reason we wanted to head home on 14th was because it is our wedding anniversary.  This year would have been our 5th.  We were planning on booking in to a hotel nearer to home for 14th and 15th so we had some time out alone.... Instead I will just be alone. This is the last trip I need to make that Steve and I had planned together.  The only other things I still have left to do that were planned with Steve is wrap and deliver the Christmas presents we had already bought.  Steve never stopped looking forward and planning for our future, he and we lived every minute of his last nine months from diagnosis to death to the best we could. I have read Steve's blog again this morning from this day last year, t seems we had a lie in last year, not this year though, here's what he had to say about this day last year, http://troubleblogging.blogspot.com/2010/10/sleeping-in.html Right now I'm sat in the car typing this.  I like not driving, it means I can make more use of my travel time!  Hope to catch you soon, Mark x

Laugh and the whole world laughs with you, Cry and you get wet...

Firstly here is Steve's blog entry for this day lats year, (Click Here) Sorry if you don't want to see what he wrote last year but right now there are a lot of anniversaries and I think seeing how Steve was 12 months ago really puts things into context.  Remember he was the one living with a death sentence, not me but, despite that he has given me (and may readers of his blog who messaged privately), inspiration and strength to carry on.

I am still reminded every day about the positive impact Steve has had on my life, I love him so much for that.  He has shown me happiness I never imagined but he has also introduced me to friends I may never have known, to their love which I may never have felt and has helped me realise my own strength of character which I never knew existed.

Today has been an OK sort of day.  I don't mention work much not because it is good, bad or indifferent but because they monitor and read my posts.  I know how I feel about that and I am sure each person reading will have views too but this blog is not about them or where I work etc it is about me, for once it is all about me.  Well, not really, Steve features greatly too.

On a personal note I have had a reasonable few days.  I have made contact with some old friends, made some new ones and generally I feel I am slowly re-constructing a life around myself.  I don't think a lottery win would make it happen sooner but the £100M Euromillions jackpot on Friday would be fab, there are so many charities I would help, I reckon I could "lose" half at least and not miss it.

Tomorrow night I may not get to blog, I am off to the theatre with Mother to see "Top Hat".  I saw it advertised some time ago, I mentioned it to a friend and we said it would be nice to go but never got around to booking.  Mother mentioned it last week so I managed to get tickets earlier this week.  Feathers, Sequins, Tailcoats and Top Hats  reminds me of Steve and I or, should I say, Enid and Bobbie....

Looking at this picture though has reminded me of another "Tailcoat and Top Hat" picture...

There aren't any better ones of the two of us in this garb but again seeing the corset reminded me of another occasion we wore the corsets

This was MANY years ago for a friend's 40th Birthday, the birthday "boy" is in the middle

There are SO many happy memories crammed in to the relatively short time we were together and each and every one makes me smile.  Today, or rather, this evening, has made me smile a lot.  Chatting to a friend this evening too has made me smile.  There is light at the end of the tunnel.  Steve is showing me the way, guiding me toward happier times. Thank you Steve, Thank you family, Thank you friends.

Goodnight for now xxxx Mark xxxx

On this day 12 months ago...

It’s been a few days. Not all bad. Today I have felt a little numb. But, firstly to catch up on the saga of British Gas. Following my complaint submission I have still not received a response from them. Their policy states I will receive a reply within 24 hours, so far it’s three times that so tomorrow I shall be re-submitting my complaint and highlighting their inadequacies yet again.


On Tuesday evening after work I tried again to resolve my Internet and printing issues. I was really angry and highly stressed. MY Mum tried to help, she came up with all sorts of solutions, things I had thought of already but this also got me stressed, I just wanted to be able to fix it, I didn’t want to talk to anyone about it and certainly didn’t want to speak to some overseas call centre who would barely understand me and whom I would struggle to understand.

Eventually I relented and called Virgin. I was relieved to find that my call was dealt with by a nice Scottish man at a centre near Glasgow. He was wonderful and managed to get on to my computer remotely when I connected the Ethernet wire and sort the problem. Basically the technology employed within the workings of the hub was newer than the drivers installed on my laptops so, both laptops could see the hub but could not communicate with it. The guy managed to update those and assured me that once installed then they would be able to connect to the printer and my wireless printing problem would be resolved too.

After I got “connected” I had to go out and sort a few things. When I got back later and finally settled it was after 10pm so I was slightly hesitant about raising my stress levels again before bed by trying to connect my printer. The wonderful Scottish man was right, it connected no problem at all, I was back in the land of the connected and I felt better knowing the problem had not been my incompetence but a software problem which I couldn’t possibly know anything about unless advised.

Yesterday evening, (Wednesday) was an OK sort of day.  Work was OK I guess but after work I had to sort out my eBay parcels and get them to the post office.  After that I called around to see a friend.  We chatted for a while and he gave me his view of where I am "at" at the moment.

It was interesting to listen to a different perspective, something which has obviously been discussed in other circles but not in a bad way.  It was interesting to see how there is a perception that some things / people / circumstances etc are hampering my ability to "heal" and make positive moves to re-construct my life.

Some of the points raised were completely valid I felt and I agreed.  I did state my reasons for allowing the circumstance / situation / issue to continue and although on one hand I know I could be selfish and only think of me but Stephens life touched so many and it is not only me dealing with his loss.  Part of the points raised I felt were not relevant and I explained why and hopefully I made sense.  It makes sense to me.  Simply put, some things which seem to be negative are in fact positive some negatives I agree are negative but I have reasons for not addressing them right now so it's a case of taking a little rough with the smooth.

On the way home I called in to the shop and bought some wine, Odd but I am sure bottles are getting smaller, only 2½ glasses from one bottle..... Really though I was being piggish, it was a 750ml bottle, my glasses are just a little too big I suppose.

After that I decided not to open a second bottle and headed for bed.  I was tired.  Then it hit me.  I can only explain it as "washing over me" much like someone throwing a bucket of water over me.  I was consumed by grief and started to cry.  No good reason, no trigger song or word or picture it was just there.  I sobbed myself to sleep last night.

I suppose if I am honest I really do know the reason.  Today, 29th September, is a year to the day that Steve was given 12 to 18 months to live.  He managed 8½.... where is the fairness in that?  To be told such news at just 31 years old.

That day was easily the worse day of my life up to then.  That was surpassed a few days later as I had to break the news to Steve's parents that their little boy may not be alive in 12 months time.  Steve's parents went away on holiday before his surgery and got back after his biopsy results it meant, in reality, that Steve had a few days to accustom himself to the news before breaking it to his parents.  We dumbed down his diagnosis and treatment regime when his Mum called.

Steve later said that through that period and beyond I was his rock.  I didn't feel it but I knew I had to be for him.  I took up the role immediately without asking or being asked and it started just after the news was broken to Steve.  He asked, "how long have I got?"  To be told "I don't think now is an appropriate time or place to ask that question..." really annoyed me.  You have just told a 31 year old man he has an aggressive and malignant brain tumour called Glioblastoma Multiforme growing in his head and then don't think he should ask about his future?  I was probably more than a little patronising in my response, tinged with anger and upset as Steve's hand was in mine and he was gripping it with all his might and I just wanted to stop it all for him and for me or for someone to jump out of a cupboard and say that it was some sort of sick joke.

She told Steve.  It was no joke.  I don't know if being told you have between 365 and 547 days to live was more of less than we anticipated but that 10 minute walk back from the hospital to home seemed to take an hour or more.  With my arms around Steve to support him and comfort him and both of us sobbing uncontrollably as we walked through a busy hospital, it's grounds, through the village and along our street we managed to get home where we sat and we cried in total disbelief.

We were unable to talk, but after some time Steve composed himself and carried on vacuuming the lounge which he had started before he left for the hospital.  We told a few people. We were careful though as we didn't want Steve's parents to find out via Facebook or from another well meaning friend or relative.

A mixed response would probably best describe how people took the news.  Much disbelief seemed to be the "theme" over the following days but with one notable exception, the text message that read, "Oh you might need a few days to get your head around that" was one such comment which felt more like a pat on the head that you would give a small child who has fallen and cut their knee.  No prior or further message of support or even concern, just that.  Hardly appropriate for a 31 year old man who has just been told he is living with a death sentence through no fault of his own and there is nothing he can do about it.

That's is why these past few days have been tough.  I have replayed those days in my head hundreds of times in the last year, the past months and in recent weeks.  It still doesn't feel real that I will never see him, feel him, hug him, smell him, touch him or kiss him ever again. 

Here is a link to Steve's post on the afternoon he was due to collect his results, Click Here and then the first proper blog entry after his diagnosis Click Here

I will write more in the next few days but right now I am knackered.  Today has been a long and busy day and this post is long enough....

Goodnight xxx
 first blog entry after

Help! Please......

If you are a regular reader you will know Steve's friend and colleague, Andrew, has just taken part in The Great North Run in aid of Christies Hospital in memory of Stephen. 

He set a £500 target and is VERY close to this, please please please if you can spare a few pounds please sponsor him to help him reach his target.  He has done fantastically well and Steve would be VERY proud of him and that he has done the run in Steve's name. 

Andrew is not an athlete so this really has been an achievement for him.  Well done Andrew and please help if you can by following this link: http://www.justgiving.com/andrewcroston85

I have been reading Steves blog lately from last year.  Much of it is familiar to me and the significant dates seem to be etchen in my mind.  This time last year Steve was worrying about his forthcoming surgery, here's what he had to say about it: http://troubleblogging.blogspot.com/2010/09/update.html

Those days are clear in my mind but, Steve's positive attitude bewildered me.  I didn't understand but, I  could not make any criticism.  He was offered a chance to help beat this disease and he grabbed it with both hands.  Think about that as you wonder whether it is worth forsaking the last few tablets on your course of anti biotics in favour of a night out or a few glasses of wine. 

If you are offered a chance, whether that is of health or otherwise then take it.  Some people don't get chances or choices so use yours wisely.

On learning of his diagnosis Steve stopped drinking alcohol.  there were a few exceptions but few enough to count on one hand and even then at most he would have one or two glasses and no more.  Sat here with a glass of wine I feel guilty.  Not guilty enough to stop but I am conscious of the differences. 

I still miss Steve with every breath I take, every spare moment is consumed with thoughts of him and wishing he could be here.  Another hug, another kiss even another night of him stealing the duvet.  There is nothing I wouldn't give just to have that one more time.

Tomorrow after work I am driving north to help a friend for a few days. It will be an interesting time I think as I know I am likely to meet some other people dealing with the same Cancer Steve had, a Glioblastoma Multiforme.

The timing is rubbish as this is a month of anniversaries but I doubt there would ever be a "good time" but, best foot forward and all that.

I'm signing off now to go and iron some clothes.  I hope to update again in the next few days but don't be alarmed if I don't.

Bye for now xxx
M x

Under the microscope...

Yep, thats what's happening right now, I feel I am under the microscope... annoying, frustrating, upsetting and un-nerving.  All will be resolved eventually but for now it is just there..... just like Steve's Cancer was just there...

Perhaps I should go and see that works Doctor or Shrink they wanted to send me to, I can chat to him about that and see what his views are.  Maybe not.

I cant remember when I blogged last... Friday I think so here goes for yesterday.  Twas a good day, not weather wise,that was REALLY bad, heavy rain all over but it didn't dampen my spirits.

I went out for the day with a Friend.  I filled the car with petrol, (that seems to be an expensive luxury too these days), and went to collect him.  We drove out to Gawthorpe Hall to have a look around. It was OK, not a huge house but quite interesting.  It would have been better with better weather but it was a pleasant day.

After that we drove over to Clitheroe which was OK.  I was expecting lots of little quirky shops but, thats not really what we saw.  It was OK though and I guess again the rain did make us less enthusiastic about traipsing around the shops.

From there we had a nosey at Barton Grange, a nice place to have a nosey at and already they have their chrimbo stuff in.  We chatted about Christmas again though.  I am dreading it this year.  I have had offers from friends to go and stay with them but I am still unsure, I dont really wamt to put a dampner on anyone elses Christmas by being miserable or missing Steve but I know it is going to be a tough time.

Steve LOVED Christmas, he always said he loved they was my family go over the top at Christmas with decorations and presents etc as his Chirstmasses as a kid were not like that.  Perhaps some pictures will help explain;

Fireplace 1

Fireplace 2

Fireplace 3

Stairs

Pink Candlestick

Tall Candleabra

Bling Tree

Our Christmasses here have always been fun and Steve and I have already started Christmas shopping.  We were never as bad as to start in January, it always seems a little mean to but presents for next year in this year's sale but if we were out and saw an interesting or unusual item we thought would be particularly useful or suitable for someone then we would buy it and put it aside for Christmas.

I still subscribe to all that and all that is Christmas, I still love the season but I am dreading not having Steve with me.  The sympathetic looks or being lavished with pity for being the lonely widower. 

New year is worse, I hate it and always have.  Steve and I were supposed to work last year, (until his diagnosis that is) as he also disliked new year.  Last year we had a particularly shitty day on New years Eve, (it was the first anniversary of his Aunt's death due to cancer), so we were both in bed around 9pm.  Both upset and both scared of the future.  What was there for us to look forward to in a "New Year"?

This year I want to disappear for Christmas and New year and come back when it's all over.  I don't know what I will end up doing though.  If this place had sold and I was living alone that would be fine, I could be home alone but, as it hasn't sold yet then I have to make alternative plans.  I don't know what they will be yet.... where can I go that isn't very costly where there will be no mention of Christmas or New year?  A cave somewhere I guess!

Today I have a day of being busy planned, I want to be busy to distract myself.  I am signing off now and I will make a start.  I'm not sure what it is that I will start but I'm going to do it now.... well soon anyway.

Have a great day xxx

Mark

Am I "really" being selfish?

Before I even start this blog I know it will be a bit of a ramble. I have so many thoughts in my mind that I just need to release them all and then see what’s in there. Not sure if that makes sense but I am being selfish for now and this blog is for me. It’s been a tough week and I need the outlet right now.


Firstly I was reminded by a friend last night about the consultant’s analogy when he diagnosed a “cystic tumour”. He said right now they have just a picture of the tumour, much like an aerial photograph from a plane. They can see the factory (tumour) but they can’t see what that factory makes, i.e. they don’t know if it in benign or cancerous cells being produced.

We bought in to that explanation as it seemed simple and plausible. The consultant might have told us what sort of factory it “appears” to be but he didn’t. This isn’t a criticism at all, the consultant was great and Steve almost immediately bought in to him. He was an older gent, much like a granddad; although too young to be Steve’s granddad he had a friendly face and a nice disposition.

Once Steve’s tumour had been identified, in location and size really as we still didn’t have a name. He chose to give it a name. He called it Clive. Clive the clump and, September 22nd would be Clive’s eviction day. Big Sista, (Steve) had decided it would be evicted from the Big Bruvva house.

Steve’s humour was not appreciated by all. Some thought him disrespectful to not take his condition seriously. Steve and I always joked about his tumour, that’s because that the way he wanted it. He figured in much the same way as the monster under your bed (you imagine as a child), is less scary when you picture it wearing bunny ears and a pink tutu by Steve mocking his tumour then it could not harm him.

Even though Steve is no longer with us I still like to think his tumour didn’t get the better of him. It didn’t rob him of his dignity and, I only have good memories of Steve. I reckon most, if not all, of his family and friends also have good memories as none of them saw him “ill”. He carried on regardless. I knew he was struggling. Struggling to stay awake, struggling to keep on walking or talking or being sociable but, Steve NEVER gave in to it. He would not allow it.

When we went to Scotland in April for his birthday he found the constant walking and sightseeing tiresome and difficult. He never let on. Not to our friends anyway. I knew because I knew Steve but he masked it well. Sometimes I wish he hadn’t. Would we have taken it more slowly if he had been honest? Probably. And that is what Steve DIDNT want. He wanted to be “normal” so he kept quiet and I supported his choice.

The same with work. He wanted to be “normal”. On the Friday before he died he “worked from home” as usual. Just 5 days later he was dead. Nobody understood his desire to work and maintain a routine. I did. He didn’t want to let go of the life he loved and never for one minute did he believe that Cancer would win.

Cancer hasn’t won. Because he didn’t deteriorate or become bedbound he will always remain young and vibrant, happy and cheerful. Even on the Sunday, before he died on Wednesday, he joked with a friend (G) and was happy and positive. He was the last friend really to see Steve “well”.

Re-reading that last paragraph is difficult through the tears but that, I suppose, is why things have been so tough. Steve was never “ill”, he became a little poorly and then died. All within days.

Steve “evicting” his tumour was typical of him. Dumb it down so people didn’t worry. He was petrified, (and so was I) but he never let on to anyone.

I received a phone call today from Steve’s Macmillan nurse, she asked how I was. It took me by surprise but, it was lovely to hear from her. She really cheered Steve up and, although he wasn’t in constant contact with her she remembered him when we saw her at Christies Hospital in the corridor and she made a hugely positive impact on Steve. Just being herself. She is a lovely person and SO easy to speak to. I can’t sing her praises highly enough and, on top of all that she came to Steve’s funeral. She didn’t need to and I wouldn’t have thought any less of her if she didn’t but she came. I owe her a HUGE hug when I see her next.

The phone call was lovely and it turns out she has been meaning to call for a while. I know that feeling, I have been “meaning” to message a few of our friends for a while and have even promised to go for coffee with a few but have not got to do that yet. I have not forgotten but I don’t want to inflict my melancholy on them. Some friends just get that from me anyway although I would prefer them not to, sometimes it is impossible to avoid.

Moving on, forward, upward, positively, all “good” words to make me feel better, I received a text from a friend this week to ask about meeting up this weekend. It was unexpected but VERY much appreciated. I have had lots of offers over the past weeks and months and I love all of our friends for that but I guess it’s just “pot luck” at the moment if they catch me on a good day or bad. If it’s a good day and I say yes then I tend to not go back on that. On a bad day I’d probably decline an invitation, even though I know I run the risk of not being asked again. I just hope people understand that I am trying. I WANT to feel happy but sometimes my heart, sometimes my head and sometimes both say NO!

Fortunately right not I feel the bad days are getting fewer or not quite as deep. The good days have not increased proportionately but, I am now experiencing “neutral” days. That’s a bonus. The “happy” medium between both ends of the scale.

Well, for now that’s about it. I do have loads more swimming around in my head but I guess that’s enough for now.

Love to you, whoever and wherever you are, I know you care because you are reading. I care that you care enough to spend your time reading. Thank you, sending big hugs xxx

Mark x

You don't die from a broken heart...

...you only wish you did.

I know this to be true as I am still alive to write this for you and yes, I have wished I could be with Steve, whatever it takes. 

The past few days have been tough.  I mentioned a few days ago the anniversary of Steve being admitted to hospital.  One year ago today he was discharged from hospital.  He was discharged following an appointment with a Consultant Neurosurgeon.

The meeting was at a different hospital, the one near our home so, we collected Steve's belongings and drove over to the hospital.  Steve's Mum had decided she wanted to go too, even though Steve didn't want that, (he just didn't want the fuss), he was beyond putting up an arguement and just accepted it.

We waited outside the ward for our appointment.  A very secure ward with restricted doors etc so only authorised personnel were allowed in.  We were shown to an office and asked to wait.  Steve was sat alongside me gripping my hand tightly, he was SO scared but put on a brave face.

The Consultant entered the room, a friendly looking older gent closely followed by a nurse, in uniform but holding a leaflet.  One glance at the leaflet and I saw the word "Macmillan" across it.  My heart sunk and I guessed what might be coming.  She placed the leaflet face down on the table next to her.  It was too late, I had seen it and Steve had too.

The meeting seemed a bit of a blur to Steve, he engaged with the consultant but although he heard the words he didn't remember.  I had to go over it again for him when we got home.

The consultant told us that at present the only diagnosis he could give was that it was a cystic tumour.  This meant that it is a tumour which is of indeterminable substance.  He couldn't say if it was cancer or not and would not be drawn to make a comment as to his opinion of it.

The tumour appeared, from the scans, to measure around 3cm by 5cm, around the size of a large egg.  He showed us the scan and we could see how large it looked, it seemed to take up almost a quarter of the space his brain was occupying.  It explained the headaches.

He told Steve that he would be admitted to hospital the following week for major brain surgery and that he would be performing it.  He explained the procedure, called debulking and explained the risks, death from anaesthetic, death from complications death from etc etc.  We asked about the alternative, it wasn't very attractive, it was death. 

It was odd that he knew this tumour could kill Steve but didn't know what it was.  With hindsight I think he probably had a pretty good idea what it was but wouldn't commit until absolutely sure. 

Steve asked about out holiday, remember we were due to go on holiday early in November for 3 weeks.  All he would say is that he can't advise one way or another until the biopsy has been done.  He said if it is benign then a holiday may be just the thing he needs to relax and recuperate, if it is malignant then further treatment would continue as soon as possible to provide him with the best possible chance.

As a young, fit and healthy man he said Steve had a very good chance of making a full recovery.  He did say though that he could expect to feel tired for around six months as brain surgery can affect energy levels for quite some time.

The rest of the day we were numb.  We were grateful to be reunited at home but we were numb.

Twelve months on from that and I feel numb again.  I am brutally aware of what happened next and of my current situation but I'm managing to stay relatively composed (almost).  I cant think of very much else at the moment but I am trying to be strong.  Steve was and remained so thoroughout his journey.  I can't call it an illness as he refused to let it make him ill. 

Stephen showed more courage than I ever thought imaginable.  He called me his rock.  He was mine too.  His courage and determination was a constant inspiration to me and still is. For that I am grateful and always will be.

I still hate weekends.....

I missed a day, sorry.  I ended up chatting on the phone for about 3 hours until 2ish this morning and after that it was shower and bed.

Yesterday I went back to work.  It was ok I suppose, well really it was more chaotic than anything but interesting too.  I guess I am adjusting to how the place runs now as I have been away so long there are now three people sort of doing my old job but there is still loads for me to do.  It is actually a relief to have the help of those other people.  It was needed a long time ago but I am just appreciative of it being there now.

Last night I busied myself tidying around as someone was due to view the house today.  Some friends called around after their holiday.  It was nice to see them.  We chatted for a while and also spoke about my 'holiday' too, I explained a little how tough it was.  As I said though, words can't explain how it feels.

Oddly, they are the same friends that called around last year on Steve's second day in hospital, I was so upset at facing another night without Steve, again it is too difficult to explain, I drowned my sorrow by drinking more than half a bottle of Southern Comfort, no mixer, I just wanted alcohol to block out how I felt. 
It's strange but, since Steve died I have avoided all but the smallest amount of alcohol.  I know I am afraid of what it will do, I don't want to unlock those thoughts or emotions which are safely secured away and I know alcohol will loosen the bonds that hold those thoughts safe and sound.

After spending most of the night on the phone I showered and went to bed. It was as tough last night as it was a year ago, in fact tougher I guess.  Last year I knew Steve was safe and sound at hospital, this year I know he's dead.

Today I got up and sorted my stuff out and got easy for the viewing.  The prospective buyers came and had a look but I have no idea whether they liked it or not, I suppose time will tell.

 This afternoon I did some shopping then came home and did some cooking, I experimented with a few things and made a lovely meal for myself.  Oddly just cooking upset me.  Usually I would so this for Steve and I, inflicting new flavours and concoctions on him.  It's not so much fun cooking for one or not sharing these new flavours with someone special.

Right now I feel pretty shitty, it's been a tough night for a few reasons.  I think early to bed is the solution, the sooner I got to sleep the sooner it is a new day and a new start.

Not sure what tomorrow will bring, maybe I need some time out on my own.  I don't know but will decide tomorrow.

Goodnight x

and so the journey began...

that's where I am at, exactly twelve months since Steve was sent to the eye hospital following a routine eye test.  Following his eye test on 5th September he saw his own doctor on the morning of 7th September and he referred Steve to the eye hospital in the afternoon.  His appointment was at 2pm and I took him to the hospital despite him insisting he would be fine to go on his motorbike.

The department closed at 6pm but Steve and I were still there at 6.15pm whilst they booked him in for an MRI scan to following day.

We went home and discussed the days events but didn't worry too much.  I say that but what I mean is we didn't discuss it much.  Steve said he was worried, (as was I), but didn't see the point in getting stressed because at this point we had no idea what we would be worrying about.  We were to find out all too soon.

A year on and I have been sat here alone all day.  I have done quite a lot of work really.  Letters prepared to be sent to tie up some loose ends with Stephens affairs, there is still more to do but I felt in a work like mood today and it has also been the first day I have felt able to face some of the stuff I have had to deal with.

Steve rarely took the ostrich approach, (burying your head in the sand), and I encouraged him to face up to the things he would prefer to avoid.  He learned well and also encouraged me to do the things I put off till last minute.  I have been putting a lot of things off since he died i guess though last week's reality check, being alone on the trip we had planned together has really given me a kick up the arse.

Stephen is dead.  There is nothing I can do about it.  I know crying wont help, wishing and hoping doesn't help, in fact nothing does because I have tried. 

I learned today of a little boy called Ashley.  He died this day last year.  I have seen his picture and he is such a cute kid, that makes it all the more difficult.  He was just 8 when he died.  Its not fair is it.  It's stories like that which remind me that my pain is similar to the pain many people the world over are sharing because of one small six letter word, a small word with huge implications. Cancer.

It's because of that small but disproportionately huge word that Andrew is running for Steve and for Christies in a few weeks, I have sponsored him, can you? http://www.justgiving.com/andrewcroston85 every penny will help.

I think whilst we are all safe and sound in our own homes with our loved ones around us we forget about other peoples suffering.  Remember, cancer does not discriminate over age, race, religion, sex or sexuality.  Cancer wont care if you have thousands of pounds in the bank or just a few pennies, no matter how much is in there though you cant spend that money when you're dead.

Steve and I worked hard.  We worked all week in our day jobs and almost all weekend performing and entertaining others.  We spread a lot of happiness, joy and laughter around the country, we earned a few quid too but what good was it?  We worked and worked and worked, last year it was for our holiday in November.  Three weeks in India.  We never got there. 

Cancer stopped our plans.  Our holiday was cancelled, our money lost and days on the beach or sightseeing were replaced with hospital waiting rooms and the radiotherapy suite at Christies Hospital.  I don't know if I will ever be able to go to India to see the things Steve wanted to see, I would love to but, I realise that is is not important anymore.  The most important thing to me is no longer here.

I don't want to drag the soap box out but spare a moment.  How would you feel without your closest loved one around you?  If they had cancer would you be wishing someone had found a cure or would you feel proud that you helped do as much as possible to fight this killer?  None of us can find a cure on our own but we can join together as one voice and support those who aim to help others.

One in three of us will be affected by cancer in our lives that's for sure but, what isn't sure is which one of us it will be.

Spare a thought for Ashley's family tonight, snatched from them at just 8 years old just one year ago and please remember that any support you are able to provide is VERY much appreciated by each and every family who have lost a loved one to cancer.

Goodnight xxx

A good habit to get in to...

Today has been another good day!  I know!  Shock horror and all that.  It was good insofar as I didn't feel so down today.  The sun has shone for most of the day, well for long enough for me to put the washing out to dry after being lulled into a false sense of security just before the heavens opened and the rain came down! 

I got up this morning and pottered for a bit, I cleaned the car out, took it for a wash and then came back to polish it, stopping off en route for some cat food and the obligatory new air freshener for the car.

This evening I called round to see a friend and we went out for a drive.  We weren't out long but I suppose it beats sitting around with a brew.

Tonight I have been sat here reading, reading stuff on the Internet but reading all the same.  A friend (M) said to me a few weeks ago I should  consider writing a book.  I initially thought no but, I guess my life is quite unusual in some respects.  If nothing else it will be therapeutic to write.  I've looked in to it and, the first thing I need to do is map out my chapters.  I guess if nothing else it will give me something to do, especially as the winter nights approach, we've had the longest day now you see so we're now on the down hill slope to winter.  I'm not looking forward to that.  Steve and I used to sit in and snuggle on the sofa in the winter.  I guess this year I will need a throw or a blanket to snuggle in to.

The other positive thing today is that my olds have celebrated their wedding anniversary, I think it's 38 years, either way it's more years that I am old if that makes sense.  38 years eh!  I was late with their card, I didn't forget I just remembered late.  They didn't bother with cards though, they said they didn't feel like celebrating this year.  I understand that but I know Steve would have got them a card and would want them to celebrate too  as it's a decent milestone.

that was one of the things Steve liked about my family.  He said on more than one occasion how he loved that special days and dates were made to feel special.  I am sure he had a fuss made for his birthday as a child but he said as he got older it just became another day.  That was until he met me, he loved birthdays, Christmas, anniversaries even valentines day because he knew I would usually get him something, sometimes something odd, sometimes useful but he just loved the surprises.  He kept most of the cards I ever sent him.  When I went in his bedside drawer after he had died I found a lot of cards from me to him there, he was very sentimental really, odd but some of those cards are years old but he had kept them close to hand.

I'm going to miss spoiling him this year at Christmas, I loved how his face lit up like a child's because he had no idea what he was getting.  I guess I am glad thats one habit he didn't pick up from his Mum.  She opens her presents straight away, regardless of how early they are.  She will look at them and then close the package back up,  Whats the point?  Theres no surprise then.  Steve loved surprises, I guess I do really but Steve had a special way with surprises.... need I say more than "Star"?!?!? (go back to my blog around mid June onwards if you have no idea).

Well it's time for bed now, I was good yesterday and got in bed a whole hour earlier than the night before, it was 2.30 am, I did meddle with the phone for a bit though and will probably find something to do tonight too but, at least I am in the right place.

Before I go, if you use twitter then follow me at:  adifferentmark I guess then at least there is a "Chance" of a 2 way conversation.

Goodnight xxx

4 Weeks on and it's a good day...

I know!  I didn't expect to say that either and, I know there are a few others around me who thought the same.  That said though I don't know how tomorrow will be etc but I am not going to worry about it because today was good.

I sort of dreaded today, a whole 4 weeks to the day since Steve died, it has gone so fast but feels like an eternity.  As every minute passes I still expect a text or call from him, a silly email or just for him to come and give me a hug and ask what I'm up to.  It isn't going to happen but it doesn't stop my brain thinking (somewhere out of my control) that it will happen.

Today though was also going to be a tough one because of something I volunteered to do for www.btbuddies.org.uk .  As many of you know they have supported Steve and I with information and guidance and generally being 'there' since his diagnosis, they were one of his chosen charities, (which incidentally you can still donate to at: http://www.justgiving.com/teams/StephenFaccendaakaEnidWhiplash.)  Today BT Buddies have run a course in Wrexham called "Coping Together", it is for newly diagnosed Brain Tumour patients and their carers or partners etc.  It was a full day and included a detailed talk this morning from a Consultant neurosurgeon, Andrew Brodbelt, about the different types of tumour, their grading and how they 'look' and how they are treated.

It made for a tough session but, although learning even more about tumours may seem like closing the door after the horse has bolted, (I had similar thoughts initially too - what more do I need to know other than it killed my Steve?), it was actually interesting and beneficial to be there and hear a Consultant from a different hospital not connected in any way to Steve and not even knowing of Steve, saying what treatments are for Glioblastoma Multiforme (GBM), what the follow up scan timetables are, the difficulties in treating them and their characteristics etc, everything was consistent with what I had heard Steve's consultant say to him.  It sort of re-assured me that Steve had the best care possible and available in this country and, as he outlined the pro's and con's of some new treatments, his concerns about them and reasons why they are not used more this again served to convince me that Steve had the best possible care.  In fact listening to him and hearing about the cancers and their effects and hearing some of the other speakers really made me appreciate even more how brave Steve was and it made me even more proud of him and especially proud of his positive outlook, (notice I say positive? He was NEVER in denial, he always accepted and acknowledged the possibilities but remained positive despite this).

The other speakers today spoke about the psychological effects of living with a brain tumour and Epilepsy and brain tumours.  I could identify with a huge amount of the psychological effects of living with a tumour but they related to me in grief, how I have dealt with losing Steve and how I am dealing (or not) with where I am "at" right now.  I suppose it is the same as a tumour victim may grieve for the future they feel they may have lost, I certainly feel Steve and I grieved for the last 9 months on the loss of our future.  That doesn't mean sobbing all day but it means accepting that we are not going to get old together and have matching OAP Scooters, we wouldn't end up sat like Waldorf and Stadler (the old guys in the box in the Muppet Show), bitching about people in the street and we wouldn't ever be making the mistake of getting our dentures mixed up in a glass in the bathroom. 

We grieved not for what we had lost, because we cant lose old age because we didn't have it but we lost those thoughts of an old age.  We moved our goalposts a little and aimed for being on our boat within 12 months, for perhaps going on a holiday to see Leon in Israel later this year and we planned to make Christmas presents again this year so we could give handmade gifts, (which we knew would become even more precious if one or other of us were not around).  We didn't envisage having to bring the goalposts SO close but we still lived a full life and planned for the future as best we could, (incidentally 'we' will still be doing most of that it's just that the responsibility for them now falls solely to me).  Anyway, after him the Epilepsy woman spoke, if I am honest I didn't pay a lot of attention as it was not relevant to me, (and Steve's ONLY seizure/fit was the one that saw him off so not a nice thought).

I spent a sizable amount of the day too talking with other patients and carers about their tumours and also about Steve and his/our coping mechanisms.   A few people asked where he was, why had he chosen not to come etc and when told why he wasn't there I got the looks of shock, embarrassment, sympathy and confusion as to WHY I would choose to be there so soon after his death.  One lady burst in to tears on me... (I didn't like to tell her it should be me crying).  I explained Steve would want to help others and, if my being there helped others then that is what I will do.  I explained I volunteered and could have opted out at any time but chose not to.  Some 'got' why I was there and some didn't but they each thanked me for coming and for being so open and honest and that was appreciated.

This all seems pretty OK until you realise that this afternoon I had a small presentation to do for www.btbuddies.org.uk , as I said I was a volunteer and Natalya was naturally cautious about me doing it as she was also only too aware how soon it all is, it could have gone one way or the other with the potential for me getting Brain Tumour overload and having a complete meltdown.  As you guessed i didn't have a meltdown, the presentation was well received and I felt better for being able to do that and bring a little hope or comfort to those in the room, one said I was an inspiration, I didn't feel it but I thanked him.  I just did what I thought was the right thing to do, right for me as well as for Steve and for BT Buddies.

So there you have it, that is why it has been a good day.  Just 4 weeks on from Steve dying I have been able to help others on their brain tumour journey, something which was (is) devastating (not devestating as one of the presenters today had written),  has now been turned into a positive and is helping other people.  Just another way Steve is continuing to help people even AFTER his death.

Following on from that I have come home this evening and had 2 really nice messages, one from my Aunt (although she is only really old enough to be my big sister, but as she hates Aunt I will use Aunt) and from my Sister, both of which really made me smile.  Thank you both xxx

And finally, in proper newsreader fashion I thought as it is 4 weeks since Steve died I would post a pic of him.  It is one of my favourites.  I love the glint in his eye.  This picture was taken in Chester the morning after a large night out in Chester.  We had been outside a pub or club the night before and looked in through the hat shop window.  There, we both saw the red top hat, we both turned to each other and said, "I want one".  We loved the look of them and as we both had evening tailcoats which we used on stage we decided to buy a red hat to wear with them.  We thought red basque, stockings or fishnets, tailcoat and top hat..... there are pictures on www.troubleonline.co.uk of Steve (as Miss Whiplash) in that very costume.

We found the shop the following day and despite our horrendous hangovers we both got SOOO excited about having new hats to wear, we bought one each, strolled around town like the cats that got the cream and  then went home not buying another thing because we had only gone for our hats. I always thought Steve suited a hat.

This hat is the very same one the funeral director, Shirley, wore at Steve's funeral, it seemed a fitting tribute to him for her to wear his hat in honour of him.  She looked good in it too but not half as handsome as Steve.  I know I am biased but I still thinks he looks great considering he, (and I) had the mother of all hangovers!

Well I shall say goodnight now, sorry it's a long one but hopefully you feel better for reading something positive, I certainly feel better for writing it, for thinking it and for being there today in memory of Steve.