Ramblings of me....

Well it's been over a week and I've not written but I am looking back over the week and can see nothing but smiles really. Right now I am laid in bed next to Jonathan and enjoying a late start. It was a bank holiday yesterday so we have taken the rest of the week off. I was taking a few days off anyway but am pleased Jonathan is too.


Later this week we are off to London. I have a friend who received an OBE in the new years honours list so she's invited me along too to Buckingham Palace to see The Queen awarding her medal. It will be lovely to get to go in to the Palace and see The Queen and of course to see the whole ceremony. I will write more about that later this week.

Back to last week, there isn't a lot to say really, just work is, well, just work and home is good. On Wednesday Jonathan joined us and Steve's Mum for dinner in the evening. It's not really a big deal in the grand scheme of things but I think it is nice that Steve's Mum seems to get on well with Jonathan too.

I may of said it before but whilst I don't seek approval for my decisions from anyone I don't like the idea of my actions causing upset. We both understand how it may be difficult to see me with someone else, especially given the circumstances, and this goes for Jonathan too after such a long time with his ex but we are both mindful of that but, accept life is too short to be unhappy or to live to suit someone else's wishes so that's why we are where we are, just enjoying life and each other.

You'll recall if you read regularly that my last blog mentioned my disappointment with Facebook being unable to list me as a Widower and in a relationship. Well I haven't had a response from Facebook, not that I expected it but, it would have been nice.

Anyway, I changed my relationship status on Saturday to "In a relationship" with Jonathan. It surprised me that he did too as there are other issues for him but I was happy about it. It may not seem a big deal but it is, it's sort of publicly declaring the relationship as more than a passing fad. Now, maybe this is a difference between mature adults and teenagers but, many younger friends may change status after a second date but for me it needed to feel like more than a fling, (not that I am a 'fling' sort of guy anyway).

My change of mindset on this comes as a result of two things really. Firstly I recently posted on another widowed friends Facebook wall that "moving on doesn't mean forgetting it just means accepting", this came about as people had commented how cheery she was following the death of her husband. She has to move on, she has small children who need her love and attention but, like me, she was able to grieve for her lost future with her husband before he died. I can't explain but I hope you understand. Those who have experienced a terminal diagnosis will understand.

Secondly, I am very proud of Jonathan, he is a lovely guy and far from trying to eradicate Steve he is accepting of my situation, he never complains about anyone mentioning this guy who must seem like a hero from all the nice things people say about him. Whilst I can't deny Steve's existence and the influence he had on me I can not deny Jonathan's existence and how happy he has made me.

My relationship with Jonathan is equally as important as that with Steve but Jonathan is the present and Stephen and I can no longer be together physically so it is only right I do as I keep promising myself I will do and live for today, and, for those around me today. One of my "inspirational quotes" I have on my iPad reminds me of this and goes along the lines of, "the past is a nice place to look at but not to live in" by this I take it to mean accept and appreciate the journey you have been on. Allow it to shape your future but don't let it rule your present.

That's it I guess, that's where my blog has taken me today. I never know really when I set out where my blog will go. I just write and think with not too much thought of whether it makes sense, it's just the ramblings of me and these are just snippets of conversations I have with myself in my head.

Just thinking about other things, it's two weeks until my holiday, I still have a lot to sort, including travel insurance so these are all jobs on the mental list I have. I need to wash and pack holiday clothes but, before that I need to sort clothes for London. We are making best use of our train tickets and staying an extra two nights in London.

When I looked at the price of tickets etc the return tickets dropped in price drastically if we returned on Saturday, so much so that we were able to pay for a hotel for an extra night and return travel for just £10 more than the cost of an earlier return. It's not rocket science is it, just £10 more for an extra night away! Jonathan has been stressed and needed a break too so it's all worked out for the best. Hopefully he will return to work next week rejuvenated, inspired and fired up!

Finally, on a more sombre note this week has seen the passing of another BT Buddy, a guy with a brain tumour that Steve and I met at The Palace of Westminster when we went for the Behind The Mask exhibition in March 2011. (click here and scroll past the interviews to see Steve's mask and what he wrote about it) (Read more about his radiotherapy mask and how it was made, click here) He was a lovely lad, early 30's (like Steve) and so much to offer. It's so sad, he has left a young daughter too who will never know her Dad. I am also aware of some more BT Buddies in my wider circle too who have passed this week. It always makes me thoughtful to hear of these lives extinguished. My thoughts have been with the BTB team a lot this week, I want to help more and feel now I am in a good place I can do that more so.

Anyway that's me done, I shall email this off to myself from my iPad to my PC so I can add the pics so when I upload this later don't think I am lazy still being in bed mid afternoon, it's only 9.30am now, it's a day off work but I'm getting up, just as soon as I've had a hug and kiss from the dishy bloke beside me!

Xx M xX

A New Box! A New Rant!

I am sure many of you will look at that title and wonder... “what the hell?.....” So, here goes. Anyone that knows me now or who has known me over the years knows I have a bit of a thing for boxes. Not the cardboard variety but just nice boxes. I have special boxes for cufflinks, obviously one for jewellery and another for watches. There’s some with photos and some for photos which are in frames, (I tend to move pictures around). There are some full of trinkets and bits and some that I may not have looked in for many months but in addition to those I have memory boxes too. I say boxes as in plural as there are a few. The most recent being obviously one which has a lot of Stuff from Steve’s last 18 months or so in there. In short, I have bought a new box, I will explain.

You may or may not be a friend with me on Facebook, it doesn’t matter if you are not because I will explain. This weekend I got more than a little frustrated with Facebook. This was because I realised how very restrictive it can be. These thoughts were brought about as I looked at the pictures I had just had delivered, they were pictures Jonathan and I have taken since we have been together and there was one I had printed so I could frame it. I really like the picture and it’s a nice memory, taken just a month after we first met.

To go with this “marker” I thought it would be nice to update my relationship status to “In a relationship”, not for any other reason than I think it is quite positive to be able to show that there can be life after bereavement, for others who are facing difficult times such as I have endured and for family and friends who are, on times, afraid to comment on how “happy” you seem as they don’t want to cause offence or appear disrespectful to the lost loved one.

To me, a relationship status of “Widowed & In a relationship” would sum up exactly where I am at. Unfortunately Facebook disagrees as I can only be one or the other. Now this puts me in a quandary. I would and could never deny I am a widower but at the same time I don’t want to deny I am in a new relationship. At what point do I make the change from Widower to whatever is next? When I re-marry? When a specific period of time has passed or just when the wind is blowing in the right direction? Even when I do re-marry then surely I would still be a Widower all be it a re-married Widower? Am I holding too much emphasis on that status as the surviving spouse? I think I know the answer, I think it has to be when I am ready to make the switch.

It is true that for a period of time when first bereaved you automatically gain a certain amount of understanding, sympathy and tolerance from people around you, “Oh, he’s just lost his husband.....” etc but I am sure that fades over time as people become used to the new ‘norm’. By keeping my widowed status am I preventing others from moving on? Does this make seeing me with someone else more difficult for them? Already it’s been mentioned that getting used to saying Mark & Jonathan feels odd especially when they are used to Mark & Steve. The top and bottom of all this though is that I don’t have an answer, there is no right and no wrong. I feel truly blessed to have met Jonathan though and, even more so when I see and hear how comfortable he is with Steve and his memory. I even heard him chatting to the Cat yesterday asking her if she missed her Daddy Steve?! Clearly the cat didn’t reply she just continued to purr but I am happy that Steve seems to have become a part of Jonathan’s life too. In an odd sort of way I wish they had both been able to meet, I am sure they would have got on fantastically. My relationship status will change soon, in the meantime I have sent an email to Facebook to note my disappointment and suggest this may need re-thinking.

Back to the new box though. Because I am at this new and exciting point with Jonathan I want to enjoy it and I want to be able to look back and remember all those fun things we did together in the early days. I have bought a new leather box, it’s quite big but, I hope it will fill over the years with many tokens, scraps of paper, tickets or any and all manner of things which will probably have no monetary value just a sentimental one. I’ve started with a few ticket stubs and a photo album which I have started to fill. I’m also taking the time to add dates to the pictures as it can be tiresome to try and recall when a picture was taken. I hope Jonathan will add bits to it too as it’s as much his memory box as mine now.... It is empty and waiting to be filled in just the same way as those megabytes of web space I have waiting to be populated and the blank pages of Jonathan’s diary he has yet to fill.

So that’s it, that’s all about the new box. I will tell you a little about our weekend though before I go. Friday night was lovely, just the two of us and two cats, sat in with dinner, a few drinks, soft music and plenty of chat. On Saturday we got up and after a light breakfast headed out to meet friends for afternoon tea in Manchester. Well, as you may expect, tea led to beer which led to further beer, we stayed out for dinner though and another drink and finally left Manchester after 10.00pm. It was a lovely relaxed and spontaneous day with good company, good food and good drinks too. I am very much looking forward to doing it again. Yesterday was a busy day, we had a late start but a friend called in and met Jonathan then we headed out to see family before coming back so more friends could meet Jonathan. He is becoming somewhat of a tourist attraction, I guess it may be the bunny pictures that did it.... hmmm did I post that here? Well here goes, he will hate it but I think he looks cute!

We relaxed last night and again just sat and chatted over a few drinks. I didn’t want to get up this morning but when I did I was smiling! This was because Jonathan had got up just a few minutes before and showed me his “Alarm Clock Dance”! I have no idea how to explain this but it is suffice to say I have never seen anything like it and it’s the first time in a long time I have chuckled as I got up on a Monday morning.

Well I hope your day has been a good one and I will be back to write again soon.

xxMxx

Significantly different

That’s how things are right now. It’s been quite a week since I wrote last. A long and difficult week. I would say it’s possibly been one of the most difficult weeks of recent months and I don’t understand why. I’ve had a few worries, not much more than usual though.



It hasn’t been a particularly busy week, I have kept busy but under my own initiative in the main not under the direction or request of others. I am starting to become aware though of this building stress within me, I am not sure if keeping busy is helping distract me from the thing that’s bothering me or if it’s adding to it. I appreciate being busy though as I can absorb myself in the task at hand instead of sitting and reflecting, perhaps that’s what’s making the blog difficult, having to reflect, all be it for a short time. I am forcing myself to think about things. I still recognise it’s helpful though to me and to others too and re-reading Stephen’s blog of this time last year reminds me of that.



Reading Steve’s blog of November 21st Last year I came across the following paragraph:

I have thought about Mark and what he will do when am not here - we often


laugh that it will be me getting phone calls from the police station saying


that they have picked him up in Tesco shoplifting etc wearing a big Floppy


Hay at the age of 70 - that's our plan you see - he goes slightly erratic


and I go sort him out when were older. Obviously this plan has now changed a


little bit, and I'm doing erratic and odd things and he sorts me out.

It got to me. Yes, I used to enjoy being slightly eccentric, adopting a fun a jovial outlook on life and trivialising things to make them more palatable. All of that has gone. I recognise that person but I have not seen him for a long time.



Back to the present. On Friday, after a trip to Liverpool with a friend I called in to The Trafford Centre to have a wander through the shops, More than anything it was just time out, wandering around aimlessly I wandered from one end to the other. I got to John Lewis and as I walked through the homewares department I saw a cushion on a bed in a display. It was very simple, Grey and Red and had a ‘patch’ embroidered on it which said “You & Me”. It was lovely. I approached the display to take a closer look and then it hit me. There is no “You” in my bed, there is just a “Me”. I fought back the tears, just as I am trying to do now.



Such a beautiful gift and nobody to share it with. As I walked the very long walk to where my car was parked I seemed to pass an endless number of couples, Gay couples, Lesbian couples, some clearly mature relationships and some clearly new but seeing each one gave me a punch in the gut, making me remember loud and clear what I have lost. I know our family and friends have lost too but life for them is as normal. I am the one waking up alone every morning and getting in to a cold and empty bed at night, as I know many others do but every morning I wake alone serves to remind me and, every night I slip in to a cold bed does the same.



Friday was difficult



On Saturday I spent the whole day busying myself. I started wrapping Christmas presents. On finishing the first the person for whom the gift was intended sent me a SMS message. As I completed wrapping the second the recipients arrived at the door. It was an odd coincidence and I can’t help but think Steve had some sort of influence there. The third, fourth and so on did not generate any SMS or visits etc, perhaps for the best and I continued to busy myself being creative and wrapping presents.



On Sunday I did the same again, more wrapping and more creativity. Some gifts have been parcelled up to be sent abroad, they will go to the post office this week.



Well today has seen the start of a new week. I have a busy week this week at work but a few things to look forward to throughout the week. Most importantly though I’m looking forward to the weekend. Time is whizzing by lately. Christmas is looming, beyond that there’s New Year. That’s a whole other blog entry so for now..... Goodnight and thank you for being so patient.

Second blog of the day. Happy Anniversary ? ? ?

Yes, this is a second blog because to add it on to my previous one just would not do it justice.

You may have guessed from the title today is anniversary.  Not a happy anniversary but memories of happier times with the one person I have loved more than anything or anyone else in the world.

I hope wherever you are Stephen that you are at peace, free from pain and worry and illness.  I love you more and more with each passing hour, the pain cuts deeper and my heart feels heavier with each passing day.  You were the best thing that ever happened to me, you made every day with you a happy one, even when we disagreed you still managed to make me smile and I have never been able to be annoyed at you for long, your smile, your cheeky look, your sparkly eyes and your tender touch could make any troubles disappear, I wish you were here to do that now.

On this day in 2006 we became one, joined in the eyes of the law, of our family and of our friends.  You said it was the happiest day of your life, a life cut short but a life which touched so many.  I've lit some candles for you and us tonight.  Not a romantic night in but I know you loved our candlelit nights in.

You've not been far from my thoughts since you passed, this week has been tough and today especially so. I keep smiling though, I don't want to but I know many find my feelings, thoughts and emotions too much to deal with, for them I smile, I spare them the discomfort and hide it from the world, not just today but every day for many weeks now.

It has been nice to come home today, back to our home.  I know we had planned to go away this weekend, just escape, the two of us, similar to how we did last year.  I remember this weekend last year, getting away to the countryside, no phone signal, an open log fire and plenty of time to talk.  Those are happy memories, not a great time because we already had a hint of what may be, but, you smiled and stayed positive and never gave up.  You loved the simple things, a walk in the bracing winds, dodging the puddles or wiping the rain from your glasses, the weather never dampened your spirits or your zest for life and I try to keep that in mind to stay happy for you.

I saw this pebble a while ago, thought of you and bought it but it has heightened meaning and sentiment today.  I have also been very thoughtful this week about hope.  you never gave up hope, it stayed with you and with us to the very end.  I am learning to hope again.  Hoping for a brighter future, hoping I can learn to live with this pain and hoping that wherever you are you are safe and at peace.
I have noticed this week that Hope is your legacy to me, it is the one thing you have shown me and taught me which will always be with me, no matter how little money I have, how dark the days are or how long the nights are, it will always be there.  I saw this "token" on my first day in Cardiff and bought it,  I am seeing the hope around me.  Hopes for life, for a future and for a new beginning and for that I thank you.

I have re read you blog (click here) tonight from this day last year.  I was so proud of you then and still am.  The sign is still in the house in the same place you decided to put it where it would cheer you up every morning and give you a spark to light the fire that kept you driving forward.  I know I will "get there" eventually, in the meantime though I am continuing your blog. You are still an inspiration to many and even within the last few weeks I have had feedback from people who have found your journey an inspiration and comfort to them, in particular your approach to your treatment. 

Once again Happy Anniversary Stephen, thank you for the good times, you will be in my heart forever.

Till we meet again, 831 Pud xxx (Click here)

Am I "really" being selfish?

Before I even start this blog I know it will be a bit of a ramble. I have so many thoughts in my mind that I just need to release them all and then see what’s in there. Not sure if that makes sense but I am being selfish for now and this blog is for me. It’s been a tough week and I need the outlet right now.


Firstly I was reminded by a friend last night about the consultant’s analogy when he diagnosed a “cystic tumour”. He said right now they have just a picture of the tumour, much like an aerial photograph from a plane. They can see the factory (tumour) but they can’t see what that factory makes, i.e. they don’t know if it in benign or cancerous cells being produced.

We bought in to that explanation as it seemed simple and plausible. The consultant might have told us what sort of factory it “appears” to be but he didn’t. This isn’t a criticism at all, the consultant was great and Steve almost immediately bought in to him. He was an older gent, much like a granddad; although too young to be Steve’s granddad he had a friendly face and a nice disposition.

Once Steve’s tumour had been identified, in location and size really as we still didn’t have a name. He chose to give it a name. He called it Clive. Clive the clump and, September 22nd would be Clive’s eviction day. Big Sista, (Steve) had decided it would be evicted from the Big Bruvva house.

Steve’s humour was not appreciated by all. Some thought him disrespectful to not take his condition seriously. Steve and I always joked about his tumour, that’s because that the way he wanted it. He figured in much the same way as the monster under your bed (you imagine as a child), is less scary when you picture it wearing bunny ears and a pink tutu by Steve mocking his tumour then it could not harm him.

Even though Steve is no longer with us I still like to think his tumour didn’t get the better of him. It didn’t rob him of his dignity and, I only have good memories of Steve. I reckon most, if not all, of his family and friends also have good memories as none of them saw him “ill”. He carried on regardless. I knew he was struggling. Struggling to stay awake, struggling to keep on walking or talking or being sociable but, Steve NEVER gave in to it. He would not allow it.

When we went to Scotland in April for his birthday he found the constant walking and sightseeing tiresome and difficult. He never let on. Not to our friends anyway. I knew because I knew Steve but he masked it well. Sometimes I wish he hadn’t. Would we have taken it more slowly if he had been honest? Probably. And that is what Steve DIDNT want. He wanted to be “normal” so he kept quiet and I supported his choice.

The same with work. He wanted to be “normal”. On the Friday before he died he “worked from home” as usual. Just 5 days later he was dead. Nobody understood his desire to work and maintain a routine. I did. He didn’t want to let go of the life he loved and never for one minute did he believe that Cancer would win.

Cancer hasn’t won. Because he didn’t deteriorate or become bedbound he will always remain young and vibrant, happy and cheerful. Even on the Sunday, before he died on Wednesday, he joked with a friend (G) and was happy and positive. He was the last friend really to see Steve “well”.

Re-reading that last paragraph is difficult through the tears but that, I suppose, is why things have been so tough. Steve was never “ill”, he became a little poorly and then died. All within days.

Steve “evicting” his tumour was typical of him. Dumb it down so people didn’t worry. He was petrified, (and so was I) but he never let on to anyone.

I received a phone call today from Steve’s Macmillan nurse, she asked how I was. It took me by surprise but, it was lovely to hear from her. She really cheered Steve up and, although he wasn’t in constant contact with her she remembered him when we saw her at Christies Hospital in the corridor and she made a hugely positive impact on Steve. Just being herself. She is a lovely person and SO easy to speak to. I can’t sing her praises highly enough and, on top of all that she came to Steve’s funeral. She didn’t need to and I wouldn’t have thought any less of her if she didn’t but she came. I owe her a HUGE hug when I see her next.

The phone call was lovely and it turns out she has been meaning to call for a while. I know that feeling, I have been “meaning” to message a few of our friends for a while and have even promised to go for coffee with a few but have not got to do that yet. I have not forgotten but I don’t want to inflict my melancholy on them. Some friends just get that from me anyway although I would prefer them not to, sometimes it is impossible to avoid.

Moving on, forward, upward, positively, all “good” words to make me feel better, I received a text from a friend this week to ask about meeting up this weekend. It was unexpected but VERY much appreciated. I have had lots of offers over the past weeks and months and I love all of our friends for that but I guess it’s just “pot luck” at the moment if they catch me on a good day or bad. If it’s a good day and I say yes then I tend to not go back on that. On a bad day I’d probably decline an invitation, even though I know I run the risk of not being asked again. I just hope people understand that I am trying. I WANT to feel happy but sometimes my heart, sometimes my head and sometimes both say NO!

Fortunately right not I feel the bad days are getting fewer or not quite as deep. The good days have not increased proportionately but, I am now experiencing “neutral” days. That’s a bonus. The “happy” medium between both ends of the scale.

Well, for now that’s about it. I do have loads more swimming around in my head but I guess that’s enough for now.

Love to you, whoever and wherever you are, I know you care because you are reading. I care that you care enough to spend your time reading. Thank you, sending big hugs xxx

Mark x

An absent neutral week

I know I have been lacking in the blog area this week. Perhaps my mind has been am little absent too. It's not been a significant week, neither significantly good or significantly bad just a collection of days.


That's not meant negatively but maybe neutrally. That's probably the best explanation for my mood the last week and I am ok with it, it is better than being on the roller coaster. Don't get me wrong I have had a few 'moments' this week but that's ok.

On Tuesday this week J came and stopped, we went out for lunch and we wandered around the shops, we each bought just one item so hardly a huge spree but it was the first time I have been to a busy shopping area since Steve died so it can be seen as a step forward.

On Wednesday I didn't get up to much, I was going to venture out with the camera and did set off in the car but came home, I just didn't feel like it.

Thursday was again a bit of a quiet day but H came to see me in the eve and we had a good old natter. Also, if you remember me asking you to say a prayer or send healing thoughts for a friends nephew well it's her nephew. I am pleased to say he is doing ok, he is not fully recovered but he is out of intensive care so he is heading in the right direction. He's only 13 so please keep sending all your positive thoughts etc to Luke xxx

Friday was not so bad either, I had an appointment in the afternoon so I got up and had a leisurely morning then went to see G afterwards. It's not all good there either unfortunately, N's Dad is poorly, he has been for some time but he is in hospital again and the whole family are concerned. I feel for them a lot as they have seen Steve go through his journey and have watched me struggle with him dying and now they have this on top. It's not fair but life seldom is, and don't I know it.

Last night I was up until really late, in fact till the early hours of this morning chatting on the phone, it was a good to talk though, we were discussing ideas for raising awareness of brain tumours, I did a couple of pictures this week for #braintumourthursday on twitter, just some pics of Steve but with a hard hitting message.

They may seem harsh, I had a long think before, during and after I did them but, I decided if they stop someone and make them think then they have done their job and Steve would be pleased to know he has helped raise awareness of this cruel disease, I've recently learned of a few children with the same disease. It sickens me to know what those families will be going through now and at some point in the future.

Today has not been too bad. I got up late, not late considering I was awake until after 4am but later than usual. I showered and went in to town. I only needed to bank a cheque and post a letter. The bank was shut and I had missed the last post for today for the letter but it will go on Monday.

I thought about having a look around the shops, I went in and wandered about for a bit but came away empty handed. I realised there is nothing I need to buy or want to buy so I came home empty handed.

I had a call this afternoon from a friend about something else she has been working on, it will be great news but she has to keep it a secret for now so I will too but, eventually you will know ALL as it really is good news.

This evening I have sat here alone, not doing anything in particular but, as the weekends have been the most difficult bits of my week then I think I am doing ok so far, I'm not on a downer, that's not due to alcohol anaesthetic either as I haven't had any but it is just because I can see a light at the end of the tunnel, I just hope nobody turns it off before I get near the end!

I'm not sure what tomorrow will bring, loads to do but the weather and my motivation when I wake up will no doubt decide for me.  Here's another pic I did, you can see why the debate with myself, hard hitting and hopefully they can be used to raise awareness of brain tumours for http://www.btbuddies.org.uk/

Goodnight xxx Mark xxx

Because I knew you...

I know it's been a few days, I will update more later but for now please take a look at this video I was sent today.  It could be viewed as an "open letter" to Steve, after all I am who I am today Because I knew you...

A HUGE update

Here goes. I’ve not written for a few days so you’re in for a HUGE update.


Monday was a fairly good day. Well, sort of. You may recall I’d had a call on Saturday from Christies Hospital to go and collect Steve’s belongings which were there. I combined this with a trip to Steve’s work to drop off his computer which was brought here when he started “Working from home”. The work visit was first and was OK; I only saw Steve’s boss and we chatted a little. He’s a nice guy and Steve got on very well with him and liked him not only as a person but as a boss too.

The Christies visit was less pleasant. I had to go in to the critical care unit where Steve had been treated just before he was transferred to Hope Hospital. The nurse offered her condolence etc and I recognised her from when I was there last. I collected his bag of stuff. On the way out I bumped into the Doctor who had seen Steve on his last Chemo run, we chatted for a while but, she also said how completely shocked she had been about Steve’s passing, ESPECIALLY since she had seen him on 1st June and he died just 2 weeks later on 15th June. It was nice to talk but she understood when I told her I hope to not see her again in a ‘medical’ capacity.

After that I needed some air and a change of thought so I picked up a friend and we went to Heaton Park for a walk. I went a few weeks ago and ended up having to come home when my battery run out on the camera. This time my battery lasted a little longer but I had not charged them so I ran out of power again but I didn’t stress about it. We ended up sitting alongside the duck pond for a while chatting, it was nice to have a proper chat.

After that I drove him home and then called in at home before A friend arrived from Scotland to stay for a few days. It was nice to see here and to be able to chat. It wasn’t purely social, she had business to attend to here but all the same it was nice to catch up. We ended up talking till way too late but, it was good to do. I ended up though going to collect her from Knutsford as that’s where she had been left, it’s a long story.

Tuesday was OK, I took T to look for a scooter, and we found a really decent one quite locally. It will give her more independence, freedom and the ability to be out of the house for longer periods of time, hopefully free of pain. After that we called home again before heading off to see another friend about a different project. It all seems a bit hush hush but we’re trying not to tempt fate by bleating on about it, fingers crossed.

Tuesday evening Steve’s Mum visited as usual and again T and I spent way too long talking till far too late but again, it was good.

Yesterday was an odd day. We got up late because we’d gone to bed late. After T finally ;-) got dressed we went out. We had to call in to the bank first then went for a drive to Marple to the canal and spent a few hours watching the narrow boats navigating between locks 12 to 16. It looked like hard work for them. It made me think how realistic it is going to be for me to live on a narrow boat and cruise the network alone. The lock needs to be opened, and then the boat driven (?) in to the lock, the lock gate closed behind then wait for the lock to fill before opening the next gate, driving the boat out of the lock and then closing the lock gate behind you and then on to the next.... multiply that process by 16 and you can see how tiring and time consuming it is all likely to be, bearing in mind each lock takes about 20 minutes when at least 2 people are operating it.

I don’t want it to alter my decision but it certainly is a leveller. There’s a lot to consider. Knowing me though I am so stubborn, (like Steve) that I will probably just do it but curse the aches and pains (and exercise) involved!

After that T and I went to the Trafford Centre for dinner, we had a Thai meal and it was lovely and we then went to watch the last Harry Potter film. I guess it was significant for us both as she had read Harry Potter to her Fiancée as he lay critically ill. For me, I hadn’t thought about it before but, Steve and I have been to see every film together. I had read the books but Steve hadn’t. I refused to tell him the ending of each part though so, I realised last night Steve never knew the ending to the story. A journey Steve and I had begun together, watching a series of films, and he never got to the end.

I spent a lot of the film with tears running down my face. The 3D glasses were a good disguise. The tears flowed regardless of what was happening in the film, the film didn’t make me cry. Stephen wasn’t seeing it with me and that is what upset me.

I enjoyed the film but I had never considered going to the cinema to see a 12 rated film could be SO traumatic and make me cry almost the whole way through it.

On the way home T and I spoke about loads of stuff but the subject of music came up. She explained how she associates pieces of music with people and places. I asked what mine was. She said it is a piece for Steve and me and invited me to guess. Show tunes or Pop Music were nowhere near so I gave up and asked what song, she told me, Neil Diamond. I immediately thought or “America” or “Love on the rocks” and was puzzled. She told me it was “Forever in blue jeans”. It hit me.

I started crying straight away, the first verse says it all and I remembered straight away the time and place and events and why that song had become significant to us. I re-posted Steve’s blog last night with the song.

The first verse reads:

Money Talks

But it don't sing and dance

And it don't walk

As long as I can have you here with me

I'd much rather be

Forever in blue jeans

Forever in Blue Jeans

I told Stephen it was relevant to us, sod the drag, sod the stage lights and the glitz and glam and fun and sequins, wigs, shoes, parties, laughter and travelling, I just wanted him. I STILL only want him but, I know it will never be, not in this life at least.

I’m not going to write much about today, it’s been a Shitty day so far, hopefully I can turn it around but for now I think I have written enough.

Until next time xxx Mark xxx

Highs and Lows

Today has been another odd one.  It sort of started on a low, I felt pretty low, just sad and depressed, it's still no easier waking up alone.  I always say goodnight and good morning to Steve but he never replies anymore, my morning hug is usually a text or an email which has come in overnight and it is now always my turn to make the bed in the morning, I am always the last one out of bed so I get to make it.  I am also the first out of bed so perhaps I should have a word with myself.

This morning motivation was lacking completely, I guess I still felt pretty flat from the weekend.  I know i needed to sort stuff for Sheffield this weekend but couldn't be bothered, it wasn;t a personal thing i also wanted a brew but couldn't be bothered with making it.

Someone from work was supposed to come and see me this afternoon, he didn't show.  Either he forgot or whatever he wanted to discuss with me was not that important.  If I had a busy social schedule then I may have been frustrated to have waited in all day, I was in all day anyway so it didn't matter.

I started this afternoon on preparations for Sheffield, focussing on something other than the computer and away from the computer was a huge benefit.  After a few hours outside, searching for stuff and then being creative I felt so much better.  So much so that I want to do some more so hopefully tomorrow will be a creative day and a good day with good memories of Steve.  He loved being creative, if you ever meet her ask his Mum about his "Stained Glass".

Oh, something I forgot to mention the other day, when speaking to someone about Steve passing away, it must have been the pensions people anyway, either way they took some details from me and said they would write a letter.  I received the letter a few days ago.  It was from the DWP.  They thanked me for my application for Widowers benefit, (I didn't know I had applied), but they told me as Steve (and I) are under 45 we (I) am not entitled to it.  It seems I cannot be classed as a Widower, (by the DWP at least) unless I have attained the ripe old age of 45.  Steve would have loved to get to 45, in fact he was REALLY looking forward to getting to 33, mainly because it would have signified him surviving 19 months after the 12-18 month prognosis so technically beating the odds, he got 9 months.  I suppose we should be grateful for that.

What am I though if I am not a Widower?  Well, not for another 9 years or so anyway, am I in some 'other' category for now like "Widower in waiting" or something?  Who knows?  I am notgoing to stress about it, who needs a label anyway, Steve was more than my Husband he was my soul mate, husband sort of trivialises the relationship.  We always felt "Partner" to be a stronger word, even though we were "Married" (A Civil Partnership is a form of marriage), we felt Partner conveyed more of what and who we were, we were two individuals who are together as partners in life because we WANT to be there, not because of or as a result of a piece of paper but through choice, free will and an invisible unbreakable bond.

This evening I have spent time trawling the internet again.  I've actually re-visited the Macmillan website. http://community.macmillan.org.uk/, it's OK I guess and the people there are nice but it is just a bit slow.  Apparently there is an upgrade to it soon so hopefully it will become more user friendly.  Someone there though has visited our site, http://troubleonline.co.uk/ and has seen the pictures there of Steve and just commented how "right" we looked together and how beautiful Steve's eyes were.

I loved Steve's eyes, I had lots of favourite parts of Steve but his eyes just told me all I needed to know without him having to utter a word, I miss his eyes twinkling back at me, yes I have photographs but they don't twinkle like the real thing, I guess I have my memories though.

Well my mind is racing now and there is SO much I could write but I don't think it'snecessary.  I will say goodnight for now and will write again soon.

Lots of love xxx Mark xxx