We're back!

That's it! All done, our trip to the Big Smoke that is! What a great few days it has been and, I can't deny having a reason to stay an extra few days was lovely. It was practical too though as it only worked out a total of £10 more to travel home today (Saturday), including additional hotel costs than it would have cost to come home the same day as the trip to the palace!


When we arrived on Wednesday we checked in to a very swanky hotel, Jonathan tried out the posh bath whilst I raided the mini bar and complimentary snacks!

We headed out on Wednesday night to meet a friend of Jonathan's and had a lovely night, dinner, drinks and then drinks and dancing, (all be it briefly) were in order! We finally got back to our hotel room very late and turned off the light as the clock changed to 3.26am! I was awake around 4 hours later to prepare for our visit to Buckingham Palace!

The visit was lovely, it was to accompany a friend as she collected her OBE. The Queen didn't do the ceremony though, this time it was HRH Princess Anne. The whole thing was very well planned and choreographed as you'd expect, they do 27 of these investitures every year with HM Queen, HRH Prince Charles and HRH Princess Anne each doing around a third each. After the ceremony we met with some more people and went for lunch.

After a late lunch we hot footed it back to our posh hotel to collect our cases and dash across London to a not quite so posh hotel. We dumped our cases, changed quickly, (within literally 5 minutes), and then dashed off to meet another friend.

We had a lovely evening, it was nice to chat and to hear some old tales etc. we ate, we drank and then we moved on to another bar and then over to Soho for a few more drinks. It was lovely to have a night out together.

On Friday we didn't have an agenda other than having a nice time and taking in a show last night. We got up at a reasonable time and after a decent breakfast we headed out. We browsed a few shops as we made our way to Leicester Square and bought tickets for "We Will Rock You". We went for lunch nearby at Wong Kei's (Wonkys) which was really good.

From there we wandered through to Trafalgar Square then back to our hotel to change for our night out. The show was brilliant, the story was OK but overall the experience was great. If you don't know already, the musical was written by Ben Elton and features songs by Queen.  At one point the song, "Only the good die young" was sung. This was never a significant song for Steve or I at all but the lyrics resonated with me:-

Only the Good die young

They're only flying too close to the sun
And life goes on - Without you...
(see the full lyrics here)

I shed a tear but then reminded myself, life does go on and I'm fortunate to have someone at my side who is here to share that life as it goes on. He makes me very happy and I'm assured I have the same affect on him. We chatted about it and Jonathan understands and accepts that sometimes there will be little things like that to remind me of Steve. He will never be forgotten and it is nice to know that Jonathan understands.

After the show, you guessed it, we headed off to the pub. After a few drinks we headed back to the hotel and had a few glasses of wine before turning in for the night. Saturday morning we had a lie in before heading off for breakfast. We had a lazy day, wandering about, stopping for a coffee and a chat and generally just enjoying being in each others company. It's no more complicated than that. Jonathan is easy to spend time with. I enjoy his quirky ways and keep noticing endearing characteristics, all of which make me smile and make me very happy.

When we got home last night it was lovely to just relax, after a bite to eat we curled up together on the sofa together, slouching in our dressing gowns. 

We've had another lie in today and it's past midday and Jonathan has only just got dressed, he's beat me to it though as I've not had a shower yet, I've spent time here sat here posting this blog, that's my excuse anyway.  I've no idea whats on the agenda for today, if I am honest I don't really care, I am just going to enjoy another day with someone special before I  go back to work tomorrow.

I hope you are having or have had a lovely weekend and I'll write soon.

xxx M xxx

A busy week, dance routines and big smiles

Phew, hasn't time gone quickly. It's been a week since I posted last. It's been a great week too.


I know in my previous post I eluded to why I have been very happy of late and that happiness and smileyness has continued. and, I hope it will continue for very much longer too.

Back to last week though, on Tuesday Jonathan invited me to see Steps. I knew it would be a late night but, it seemed even later after being woken at 3am to be told my Dad was being taken to hospital with "Chest pains". He's had a heart attack before so obviously your mind thinks the worse. As it turned out it was an angina attack but still, being woken so early meant I was sapped of energy for Steps.

Before I went I would have insisted that I knew very few of their songs and knew none of their dance routines. By the end of the concert, whilst I could re-confirm I knew none of the dance routines, I knew all of their songs, well at very least all of those they sung in concert.

It was a lovely night and it was fun to see that Jonathan knew all of the routines as well as the words. I watched in near amazement of every perfectly choreographed move and gesture, as I said though it was also fun to see. In part because his energy and enthusiasm was extremely contagious!

My week seemed to be taking a turn for the worse on Wednesday when I received a call from home saying there was water leaking in through the bedroom ceiling so off I went to sort that too. On Thursday I was up and out early for a breakfast meeting, it started at 7.15 which is really not when I function best, I prefer evenings. I had a full day though of meetings and things to sort for work but, fingers crossed, they will all fall in to place later today ready for an event I am working on tomorrow and Wednesday.

Friday was a long day at work, fighting tiredness from the week I struggled to get through the day, so much so that when I got home I dozed off whilst watching the news. After J arrived home we decided to go out and have a few drinks. We headed off into town and had a lovely time. There was no agenda, no plans to meet up with anyone but, we managed to bump into some friends and ended up being out until the early hours of Saturday morning. It was nice not to have an agenda.

Following a late start on Saturday it was nice to see some more friends and then head out for dinner and a browse around the shops before a relaxing night in. I think that has been something we have both enjoyed over recent weeks. The chance to relax with no agenda or timescale to work to.

On Sunday we had another lazy morning but then called to visit family, and friends before heading into Manchester to attend a party. Steve's Mum got to meet Jonathan along with a few other friends too, so again it was just nice to be able to spend time together with no agenda. We ended up snuggling on the sofa again last night with a bottle of wine and a film before a reasonable early night. I was up for 5.30 this morning so it wasn't a late night.

I think, in part, that’s what has been nice about the past few weeks, the chance to sit, relax and do very little other than being happy in the company of someone that makes you smile. It sounds sickly sweet, I suppose it is, but it's still been nice. We've made each other happy and I hope it continues for a very long time to come. There are still a lot of things to sort for us both but those will sort themselves out in time, for now we're just enjoying life.

Well, that’s about all my news for now, I'm off to sort a few more things before I dash off to collect some things from a supplier for work so I will write soon, I hope you've had or are having a lovely day wherever you are and whatever you're up to.

Xx M xX

New Year and beyond

Looking back new year seems to have been a long time ago.  I was so worried about it but, in the end it worked out OK.  My parents spent most of the day out and about so I was left to my own devices.  I busied myself during the day and then after a shower decided to go out for a wander.

I wanted to buy some Issey Miyake aftershave for myself.  It was a favourite of Steve and I, I wore it before Steve met me but he liked it and we wore it on our wedding day and the funeral director made sure Steve had a "squirt" once he was ready for his final performance.  It's odd but smell evokes so many memories.

I recently re read Steve's blog from last Christmas and he mentions the same then.  I bought him a fragrance which reminded me of when we first met and he bought me more of the fragrance I was wearing when we met.  Happy memories refreshed by just slight hint of fragrance.

Anyway, long story short it wasn't in the sales so I didn't bother.  I can buy it at full price anytime to I will wait a little.  I wandered through the shopping centre and didn't buy a thing.  I've lost the desire to shop, there's not a lot I need and nothing I need urgently.

I got home and relaxed with a nice cup of Earl Grey tea and then, as darkness had fallen, I wrote my letter to Stephen on a Chinese balloon lantern and then lit it and watched it float off into the night.  I was tearful but, felt so much better for doing that.

I opened a bottle of wine but, failed to drink more than two glasses.  I saw the new year in with a cup of Earl Grey.  I watched the fireworks at London on the TV and felt the "BOOM" a lot closer to home as our neighbours set off a load of fireworks.

On new years day I relaxed.  No agenda, just a whole lot of not very much and that was the same until I returned to work on 3rd January.  it was good to be back to work.  Not because I like it there but because I was just pleased to be back to normal. 

The decorations came down shortly afterwards and things have got back to how they were before.  The numbness has returned and life is as normal (or abnormal) as it was before.

I've had a bit of a thoughtful day today.  I read today about another young man who has lost his battle against a GBM, he leaves behind a wife and two children under three years old.  This disease really doesn't discriminate about age etc and doesn't care how many lives it affects it just does it's thing.

I really feel for anyone facing the diagnosis of a GBM and the more I learn about them the more I feel this.

On a different note, I learnt at New year that a dear friend of mine has been awarded an OBE in the Queen's new Year honours list, she is now Melanie Bryan OBE, read more about her here: http://www.melaniebryan.moonfruit.com/

Apart from that I don't have a lot of news, I do have a document to upload to Stephens website, http://troubleonline.co.uk/ but will do that in the next few days and write some more.  I am sure there was more I needed to write and my thoughts have been more complex than I have mentioned but right now I am in a lighter mood so I won't dwell on that for now.

I'll write soon,

xx Mark xx

Second Attempt...

Here goes with another attempt at trying to update my blog from last week, after my short blog last night I am sure you can see my frustration with technology.



Anyway, after I wrote my blog on our anniversary I went to bed, there I cried myself to sleep, I seemed to be crying for hours. I felt alone and lonely, sad the person I wanted to spend the rest of my life with has gone. When we said “till death us do part” I had never realised it would come so soon after.


Saturday 15th was pretty uneventful. On Sunday 16th I was supposed to be going out with a friend, a little like the Three Kings he travelled from afar but not with Gold Frankincense and Myrrh but with White wine, Red wine and Mirth. Also, more like a Queen than a King but you get my drift. We were supposed to go and see another friend’s drag show early evening. I was fine in the morning and early afternoon but then it descended on me, like a cloud of gloom, a melancholy mood which I couldn’t shrug so, not wanting to spoil other peoples fun I decided not to go and to go for a drive instead. If I am honest the drive didn’t help but it meant I was alone and not upsetting anyone else with my miserable mug.


Monday was pretty uneventful from what I remember, just work and home as usual but, on Tuesday J arrived, I cooked and we ended up sat till the wee small hours over a few bottles of wine chatting about all sorts, mainly Steve I guess but, my friend doesn’t seem to mind, he understands as he too has lost a loved one tragically way too soon.


On Wednesday it was work as usual during the day but in the evening we hit the town, well, sort of. I got home from work, freshened up and changed as did J, we then headed in to Manchester for dinner before heading off to see Peter Kay and his Tour That Didn’t Tour Show, it was fab, a real laugh and a much needed tonic. Another friend had been bought tickets and was unable to go so they kindly asked if I’d like to go, I said yes and then decided to ask my friend to come too. It was a real giggle. If I am honest I sometimes don’t get the Peter Kay brand of humour which seems to be shout louder and repeat several times but, on Wednesday I did, he was VERY funny and we both enjoyed a good old laugh. I would like to say my laughter wasn’t tempered by thoughts of Steve but it was, I missed him a lot and we spoke of him too during the interval, Steve would however have been pleased to see us out and about. It was an unexpected but very much appreciated night out and as I have already said, a real tonic.


On Thursday we had a viewing on the house so I had to come home from work early to do the show around, she seemed interested but we have heard nothing yet so will take that she has seen somewhere else preferable. Thursday and Friday were quiet apart from that. On Friday I met with a Friend and we headed out for some retail therapy and a chat, it was nice to have a wander about. On Saturday it was much the same, I met with an old friend, we spent the whole day shopping and chatting, our coffee breaks seemed to go on forever as we sat and chatted. Even though we have not seen each other for a long while it was like we saw each other last week, we had a lovely time and again, it was a real tonic to catch up with her.


Last week I also booked tickets to go on the train to see my Sister, her hubby and some friends in November. The train journey is 5 hours but the drive would be the same, the train is cheaper though and it means I can relax on the journey and arrive fresher than if I had driven. It will be nice to see my sister again as I have not seen here since Steve’s funeral, similarly the friends I will see there too, I’ve not seen them since Steve’s funeral. I am really looking forward to it and, I will be stashing a bottle of Gin in my suitcase when I go as I think a few bevies are in order. I didn’t get to see much of them around the time of the funeral so now, five months on, I think it is about time we raised a glass or several to Stephen, to friends and to the future and whatever it may hold.


Sunday was a good day, I spent it being creative and crafty, it was nice to have some me time which was also creative time.


Yesterday was work as usual and Today I left work and headed in to town to the shops, there was something I wanted but alas, the shop is no longer stocking the item, perhaps I will revert to Amazon. Oh, that’s the other thing too, lots of people have already asked me what I want for Christmas. I can’t comment on their planning as I am also well prepared for Christmas. Instead of saying “I don’t know” I have tried to start a “Wish List” on Amazon, just search my name on Amazon and it should be there somewhere, I don’t quite know how it works but I am told it does. As my birthday comes before xmas though I have already said I want to be boring and have cash for that as there is a modification I want done to the car which the money will come in very useful for and it will be the “finishing touch” to the changes I have made so far.


Well, I think I have covered everything now, before I go though I do just want to say a huge thank you to all my friends and family for all their support. Some of you have been supportive without knowing it and others by not doing much other than just being there of making their presence felt. I really do appreciate and thank all our friends, I’d like to think they know who they are.


Friends are like stars.....

You don’t have to see them to know they are there.



Love to you all,

M x

Second blog of the day. Happy Anniversary ? ? ?

Yes, this is a second blog because to add it on to my previous one just would not do it justice.

You may have guessed from the title today is anniversary.  Not a happy anniversary but memories of happier times with the one person I have loved more than anything or anyone else in the world.

I hope wherever you are Stephen that you are at peace, free from pain and worry and illness.  I love you more and more with each passing hour, the pain cuts deeper and my heart feels heavier with each passing day.  You were the best thing that ever happened to me, you made every day with you a happy one, even when we disagreed you still managed to make me smile and I have never been able to be annoyed at you for long, your smile, your cheeky look, your sparkly eyes and your tender touch could make any troubles disappear, I wish you were here to do that now.

On this day in 2006 we became one, joined in the eyes of the law, of our family and of our friends.  You said it was the happiest day of your life, a life cut short but a life which touched so many.  I've lit some candles for you and us tonight.  Not a romantic night in but I know you loved our candlelit nights in.

You've not been far from my thoughts since you passed, this week has been tough and today especially so. I keep smiling though, I don't want to but I know many find my feelings, thoughts and emotions too much to deal with, for them I smile, I spare them the discomfort and hide it from the world, not just today but every day for many weeks now.

It has been nice to come home today, back to our home.  I know we had planned to go away this weekend, just escape, the two of us, similar to how we did last year.  I remember this weekend last year, getting away to the countryside, no phone signal, an open log fire and plenty of time to talk.  Those are happy memories, not a great time because we already had a hint of what may be, but, you smiled and stayed positive and never gave up.  You loved the simple things, a walk in the bracing winds, dodging the puddles or wiping the rain from your glasses, the weather never dampened your spirits or your zest for life and I try to keep that in mind to stay happy for you.

I saw this pebble a while ago, thought of you and bought it but it has heightened meaning and sentiment today.  I have also been very thoughtful this week about hope.  you never gave up hope, it stayed with you and with us to the very end.  I am learning to hope again.  Hoping for a brighter future, hoping I can learn to live with this pain and hoping that wherever you are you are safe and at peace.
I have noticed this week that Hope is your legacy to me, it is the one thing you have shown me and taught me which will always be with me, no matter how little money I have, how dark the days are or how long the nights are, it will always be there.  I saw this "token" on my first day in Cardiff and bought it,  I am seeing the hope around me.  Hopes for life, for a future and for a new beginning and for that I thank you.

I have re read you blog (click here) tonight from this day last year.  I was so proud of you then and still am.  The sign is still in the house in the same place you decided to put it where it would cheer you up every morning and give you a spark to light the fire that kept you driving forward.  I know I will "get there" eventually, in the meantime though I am continuing your blog. You are still an inspiration to many and even within the last few weeks I have had feedback from people who have found your journey an inspiration and comfort to them, in particular your approach to your treatment. 

Once again Happy Anniversary Stephen, thank you for the good times, you will be in my heart forever.

Till we meet again, 831 Pud xxx (Click here)

Laugh and the whole world laughs with you, Cry and you get wet...

Firstly here is Steve's blog entry for this day lats year, (Click Here) Sorry if you don't want to see what he wrote last year but right now there are a lot of anniversaries and I think seeing how Steve was 12 months ago really puts things into context.  Remember he was the one living with a death sentence, not me but, despite that he has given me (and may readers of his blog who messaged privately), inspiration and strength to carry on.

I am still reminded every day about the positive impact Steve has had on my life, I love him so much for that.  He has shown me happiness I never imagined but he has also introduced me to friends I may never have known, to their love which I may never have felt and has helped me realise my own strength of character which I never knew existed.

Today has been an OK sort of day.  I don't mention work much not because it is good, bad or indifferent but because they monitor and read my posts.  I know how I feel about that and I am sure each person reading will have views too but this blog is not about them or where I work etc it is about me, for once it is all about me.  Well, not really, Steve features greatly too.

On a personal note I have had a reasonable few days.  I have made contact with some old friends, made some new ones and generally I feel I am slowly re-constructing a life around myself.  I don't think a lottery win would make it happen sooner but the £100M Euromillions jackpot on Friday would be fab, there are so many charities I would help, I reckon I could "lose" half at least and not miss it.

Tomorrow night I may not get to blog, I am off to the theatre with Mother to see "Top Hat".  I saw it advertised some time ago, I mentioned it to a friend and we said it would be nice to go but never got around to booking.  Mother mentioned it last week so I managed to get tickets earlier this week.  Feathers, Sequins, Tailcoats and Top Hats  reminds me of Steve and I or, should I say, Enid and Bobbie....

Looking at this picture though has reminded me of another "Tailcoat and Top Hat" picture...

There aren't any better ones of the two of us in this garb but again seeing the corset reminded me of another occasion we wore the corsets

This was MANY years ago for a friend's 40th Birthday, the birthday "boy" is in the middle

There are SO many happy memories crammed in to the relatively short time we were together and each and every one makes me smile.  Today, or rather, this evening, has made me smile a lot.  Chatting to a friend this evening too has made me smile.  There is light at the end of the tunnel.  Steve is showing me the way, guiding me toward happier times. Thank you Steve, Thank you family, Thank you friends.

Goodnight for now xxxx Mark xxxx

Help! Please......

If you are a regular reader you will know Steve's friend and colleague, Andrew, has just taken part in The Great North Run in aid of Christies Hospital in memory of Stephen. 

He set a £500 target and is VERY close to this, please please please if you can spare a few pounds please sponsor him to help him reach his target.  He has done fantastically well and Steve would be VERY proud of him and that he has done the run in Steve's name. 

Andrew is not an athlete so this really has been an achievement for him.  Well done Andrew and please help if you can by following this link: http://www.justgiving.com/andrewcroston85

I have been reading Steves blog lately from last year.  Much of it is familiar to me and the significant dates seem to be etchen in my mind.  This time last year Steve was worrying about his forthcoming surgery, here's what he had to say about it: http://troubleblogging.blogspot.com/2010/09/update.html

Those days are clear in my mind but, Steve's positive attitude bewildered me.  I didn't understand but, I  could not make any criticism.  He was offered a chance to help beat this disease and he grabbed it with both hands.  Think about that as you wonder whether it is worth forsaking the last few tablets on your course of anti biotics in favour of a night out or a few glasses of wine. 

If you are offered a chance, whether that is of health or otherwise then take it.  Some people don't get chances or choices so use yours wisely.

On learning of his diagnosis Steve stopped drinking alcohol.  there were a few exceptions but few enough to count on one hand and even then at most he would have one or two glasses and no more.  Sat here with a glass of wine I feel guilty.  Not guilty enough to stop but I am conscious of the differences. 

I still miss Steve with every breath I take, every spare moment is consumed with thoughts of him and wishing he could be here.  Another hug, another kiss even another night of him stealing the duvet.  There is nothing I wouldn't give just to have that one more time.

Tomorrow after work I am driving north to help a friend for a few days. It will be an interesting time I think as I know I am likely to meet some other people dealing with the same Cancer Steve had, a Glioblastoma Multiforme.

The timing is rubbish as this is a month of anniversaries but I doubt there would ever be a "good time" but, best foot forward and all that.

I'm signing off now to go and iron some clothes.  I hope to update again in the next few days but don't be alarmed if I don't.

Bye for now xxx
M x

Because I knew you...

I know it's been a few days, I will update more later but for now please take a look at this video I was sent today.  It could be viewed as an "open letter" to Steve, after all I am who I am today Because I knew you...

Highs and Lows

Today has been another odd one.  It sort of started on a low, I felt pretty low, just sad and depressed, it's still no easier waking up alone.  I always say goodnight and good morning to Steve but he never replies anymore, my morning hug is usually a text or an email which has come in overnight and it is now always my turn to make the bed in the morning, I am always the last one out of bed so I get to make it.  I am also the first out of bed so perhaps I should have a word with myself.

This morning motivation was lacking completely, I guess I still felt pretty flat from the weekend.  I know i needed to sort stuff for Sheffield this weekend but couldn't be bothered, it wasn;t a personal thing i also wanted a brew but couldn't be bothered with making it.

Someone from work was supposed to come and see me this afternoon, he didn't show.  Either he forgot or whatever he wanted to discuss with me was not that important.  If I had a busy social schedule then I may have been frustrated to have waited in all day, I was in all day anyway so it didn't matter.

I started this afternoon on preparations for Sheffield, focussing on something other than the computer and away from the computer was a huge benefit.  After a few hours outside, searching for stuff and then being creative I felt so much better.  So much so that I want to do some more so hopefully tomorrow will be a creative day and a good day with good memories of Steve.  He loved being creative, if you ever meet her ask his Mum about his "Stained Glass".

Oh, something I forgot to mention the other day, when speaking to someone about Steve passing away, it must have been the pensions people anyway, either way they took some details from me and said they would write a letter.  I received the letter a few days ago.  It was from the DWP.  They thanked me for my application for Widowers benefit, (I didn't know I had applied), but they told me as Steve (and I) are under 45 we (I) am not entitled to it.  It seems I cannot be classed as a Widower, (by the DWP at least) unless I have attained the ripe old age of 45.  Steve would have loved to get to 45, in fact he was REALLY looking forward to getting to 33, mainly because it would have signified him surviving 19 months after the 12-18 month prognosis so technically beating the odds, he got 9 months.  I suppose we should be grateful for that.

What am I though if I am not a Widower?  Well, not for another 9 years or so anyway, am I in some 'other' category for now like "Widower in waiting" or something?  Who knows?  I am notgoing to stress about it, who needs a label anyway, Steve was more than my Husband he was my soul mate, husband sort of trivialises the relationship.  We always felt "Partner" to be a stronger word, even though we were "Married" (A Civil Partnership is a form of marriage), we felt Partner conveyed more of what and who we were, we were two individuals who are together as partners in life because we WANT to be there, not because of or as a result of a piece of paper but through choice, free will and an invisible unbreakable bond.

This evening I have spent time trawling the internet again.  I've actually re-visited the Macmillan website. http://community.macmillan.org.uk/, it's OK I guess and the people there are nice but it is just a bit slow.  Apparently there is an upgrade to it soon so hopefully it will become more user friendly.  Someone there though has visited our site, http://troubleonline.co.uk/ and has seen the pictures there of Steve and just commented how "right" we looked together and how beautiful Steve's eyes were.

I loved Steve's eyes, I had lots of favourite parts of Steve but his eyes just told me all I needed to know without him having to utter a word, I miss his eyes twinkling back at me, yes I have photographs but they don't twinkle like the real thing, I guess I have my memories though.

Well my mind is racing now and there is SO much I could write but I don't think it'snecessary.  I will say goodnight for now and will write again soon.

Lots of love xxx Mark xxx