Showing posts with label Fun. Show all posts
Showing posts with label Fun. Show all posts

Thursday, 28 July 2011

A HUGE update

Here goes. I’ve not written for a few days so you’re in for a HUGE update.


Monday was a fairly good day. Well, sort of. You may recall I’d had a call on Saturday from Christies Hospital to go and collect Steve’s belongings which were there. I combined this with a trip to Steve’s work to drop off his computer which was brought here when he started “Working from home”. The work visit was first and was OK; I only saw Steve’s boss and we chatted a little. He’s a nice guy and Steve got on very well with him and liked him not only as a person but as a boss too.

The Christies visit was less pleasant. I had to go in to the critical care unit where Steve had been treated just before he was transferred to Hope Hospital. The nurse offered her condolence etc and I recognised her from when I was there last. I collected his bag of stuff. On the way out I bumped into the Doctor who had seen Steve on his last Chemo run, we chatted for a while but, she also said how completely shocked she had been about Steve’s passing, ESPECIALLY since she had seen him on 1st June and he died just 2 weeks later on 15th June. It was nice to talk but she understood when I told her I hope to not see her again in a ‘medical’ capacity.

After that I needed some air and a change of thought so I picked up a friend and we went to Heaton Park for a walk. I went a few weeks ago and ended up having to come home when my battery run out on the camera. This time my battery lasted a little longer but I had not charged them so I ran out of power again but I didn’t stress about it. We ended up sitting alongside the duck pond for a while chatting, it was nice to have a proper chat.

After that I drove him home and then called in at home before A friend arrived from Scotland to stay for a few days. It was nice to see here and to be able to chat. It wasn’t purely social, she had business to attend to here but all the same it was nice to catch up. We ended up talking till way too late but, it was good to do. I ended up though going to collect her from Knutsford as that’s where she had been left, it’s a long story.

Tuesday was OK, I took T to look for a scooter, and we found a really decent one quite locally. It will give her more independence, freedom and the ability to be out of the house for longer periods of time, hopefully free of pain. After that we called home again before heading off to see another friend about a different project. It all seems a bit hush hush but we’re trying not to tempt fate by bleating on about it, fingers crossed.

Tuesday evening Steve’s Mum visited as usual and again T and I spent way too long talking till far too late but again, it was good.

Yesterday was an odd day. We got up late because we’d gone to bed late. After T finally ;-) got dressed we went out. We had to call in to the bank first then went for a drive to Marple to the canal and spent a few hours watching the narrow boats navigating between locks 12 to 16. It looked like hard work for them. It made me think how realistic it is going to be for me to live on a narrow boat and cruise the network alone. The lock needs to be opened, and then the boat driven (?) in to the lock, the lock gate closed behind then wait for the lock to fill before opening the next gate, driving the boat out of the lock and then closing the lock gate behind you and then on to the next.... multiply that process by 16 and you can see how tiring and time consuming it is all likely to be, bearing in mind each lock takes about 20 minutes when at least 2 people are operating it.

I don’t want it to alter my decision but it certainly is a leveller. There’s a lot to consider. Knowing me though I am so stubborn, (like Steve) that I will probably just do it but curse the aches and pains (and exercise) involved!

After that T and I went to the Trafford Centre for dinner, we had a Thai meal and it was lovely and we then went to watch the last Harry Potter film. I guess it was significant for us both as she had read Harry Potter to her Fiancée as he lay critically ill. For me, I hadn’t thought about it before but, Steve and I have been to see every film together. I had read the books but Steve hadn’t. I refused to tell him the ending of each part though so, I realised last night Steve never knew the ending to the story. A journey Steve and I had begun together, watching a series of films, and he never got to the end.

I spent a lot of the film with tears running down my face. The 3D glasses were a good disguise. The tears flowed regardless of what was happening in the film, the film didn’t make me cry. Stephen wasn’t seeing it with me and that is what upset me.

I enjoyed the film but I had never considered going to the cinema to see a 12 rated film could be SO traumatic and make me cry almost the whole way through it.

On the way home T and I spoke about loads of stuff but the subject of music came up. She explained how she associates pieces of music with people and places. I asked what mine was. She said it is a piece for Steve and me and invited me to guess. Show tunes or Pop Music were nowhere near so I gave up and asked what song, she told me, Neil Diamond. I immediately thought or “America” or “Love on the rocks” and was puzzled. She told me it was “Forever in blue jeans”. It hit me.

I started crying straight away, the first verse says it all and I remembered straight away the time and place and events and why that song had become significant to us. I re-posted Steve’s blog last night with the song.

The first verse reads:

Money Talks
But it don't sing and dance
And it don't walk
As long as I can have you here with me
I'd much rather be
Forever in blue jeans
Forever in Blue Jeans

I told Stephen it was relevant to us, sod the drag, sod the stage lights and the glitz and glam and fun and sequins, wigs, shoes, parties, laughter and travelling, I just wanted him. I STILL only want him but, I know it will never be, not in this life at least.

I’m not going to write much about today, it’s been a Shitty day so far, hopefully I can turn it around but for now I think I have written enough.

Until next time xxx Mark xxx

Tuesday, 19 July 2011

Nothingness

I am not sure if that is a real word or one I just made up but thats what today has been, a whole day of nothing.  I got up at a reasonable time even though I was up till very late last night.

I pottered around this morning, in fact I have for most of the day.  I guess with everything that has happened over the weekend I sort of felt a little lost so amongst other things Steve has been on my mind a lot again today.

I have to start looking at financial stuff in detail soon too, two peoples outgoings with one persons wage isn't easy and Steve has not made things easy for me, I guess the plans we had made were just too long term because we had no reason to doubt a longer prognosis, lesson learned I think and learned the hard way too.  The thing is it has all lost it's relevance now he has gone.  I just want to bury my head in the sand until it all goes away and, as it will never go away then I will have my head there for a very long time.

I have been thinking about something said on the Brain Tumour course I was at last week for http://www.btbuddies.org.uk/ plan the fun in your week.  How can I plan fun?  Anything fun and exciting and interesting I have done for the last 6 years has included Steve.  Before Steve my 'fun' used to be dating and partying 6 or 7 nights a week but that doesn't sound attractive anymore, I have been there and done that.  Whats fun?  What fun can a Gay Widower have?  I want some and I want to be happy on the inside not just presenting a smiling face to the outside but I don't know how.

I was thinking earlier, quite a few people have seen pictures from the weekend and have said how happy I look, how much fun it all seemed to be and how Steve would be pleased.  I suppose it hurt a little hearing that I "look" happy  Isn't it though funny how easily fooled we are, just painting on a smile makes people think we are happy but they have no idea what is going on inside.  Before I start on this train of thought I know I will sound bitter and ungrateful so I won't even start, I guess I am still hurting.  The world is moving on as it should do, people are picking themselves up and being inspired to live their life to the fullest because they have heard and seen Steve do the same.  I want the world to stop, right here right now just stop, let me cling on to the fragments of Steve I have left,  memories, pictures and thoughts, I don't want anyone or anything to move as it may unsettle the dust that is falling around me, I can't turn the clock back but I dont want it to go forward either.  What will the future hold?  I know what I want it to hold and when my head is in a "good place" I can see the vision clearly, right now though it is not, the vision is blurred by the tears in my eyes, my heart is scarred beyond recognition and I start to wonder why we thought knowing this was coming would make it easier to deal with.  I can't imagine hurting more,  My chest aches constantly, feeling hollow has become the norm and this sense of being lost is becoming all too familiar.

People say I am doing well but I wonder if I am dealing with it well or just masking it well.  I don't know if I am sliding down that slippery slope to depression or whether I am bumbling around it and making slow progress away from it.  I don't know and that is part of what is difficult.  I like to be in control and I am not.  Steve liked to be in control and he wasn't either, neither of us liked uncertainty other than that which we had planned, like taking 'pot luck' on which  jokes to tell at a gig or whether the motorway route or dual carriageway would be quicker.  I can't control these emotions yet.  I guess they are like a new pet, they need to be trained to be kept in check, sometimes I spot them, grab them, and put them away but other times they just creep up on me and consume me.  I suppose I need more time to be able to train this new 'pet', perhaps I should give my new 'pet grief' a name so I can laugh at it like Steve laughed at his Cancer.  Either way I know I have a mountain to climb, I'll get there but perhaps I need to be a little easier on myself.

Tomorrow will be a good day, if I tell myself that now then hopefully it will be.

Until then goodnight,
Mark x